Effective communication is critical for managing prescription opioids.
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Effective communication is critical for managing prescription opioids.
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Decisions to prescribe opioids should be based on the overall balance of opioid-related risks and benefits for individual patients.
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hydrocodone-acetaminophen is the most commonly prescribed medication the United States
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A common trait of physicians and other health professionals is compulsivity. Although many attributes of compulsivity—thoroughness, accuracy, second guessing, monitoring changes—are beneficial to patient care and success in medical training, this trait may also erode the personal health, satisfaction, and well-being of clinicians.
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Table 20-1.Adherence challenges for vulnerable patients and potential solutions using the IMS Model©.
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cooking healthy meals instead of those that are typical for her Hispanic culture
Odd statement
Providers should know their patients well enough to evaluate whether and how the people who are close to a patient can assist in promoting adherence; providers should also help their patients identify other formal systems of aid, including workplace-based interventions and community-based resources.
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Furthermore, meta-analytic research has indicated that patient motivation to adhere may be augmented through the use of cognitive-based behavioral strategies such as motivational interviewing.
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Figure 20-1. Clinician–patient barriers to adherence.
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To encourage patient adherence, health care providers should focus considerable attention on communicating information effectively and on determining patients’ degree of understanding of the treatment regimen.
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Patients are unlikely to follow a treatment unless its importance is clear to them and they fully comprehend the care instructions. Unintentional nonadherence commonly stems from failure at this stage in the process of care.
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The three components of the IMS Model are Information, Motivation, and Strategy.
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According to the World Health Organization, adherence is affected by many factors such as: (1) the health care system, including the provider–patient relationship, (2) the patient’s disease type and severity, (3) the type of treatment regimen and its complexity, (4) patient characteristics, and (5) socioeconomic factors.
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adhere to prevention and disease management activities (including taking medications, going to medical appointments, obtaining screening, exercising, and/or dieting); for some medical conditions, adherence can be as poor as 50% or less.
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Nonadherence (also called noncompliance) refers to a patient’s failure to follow these recommendations, such as by not filling a medication prescription or by stopping the medication before being instructed to do so, improperly using a medical device, carrying out prescribed behaviors (e.g., specific exercises) incorrectly, or entirely ignoring medical advice (such as to avoid certain foods, or to engage in disease screening).
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In the context of medical treatment, the term adherence refers to a patient’s success in following the recommendations of a health care provider for disease prevention and treatment.
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The principle and reality of patient autonomy reminds us to respectfully inquire about, thoughtfully attempt to influence, and ultimately accept patients’ decisions about how important a change is for them. We must accept that patients’ behavior is affected by many forces and influences, only one of which is us.
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ntentional behavior change is built on the underpinning of careful contemplation of the problem and ways to overcome it, a clear commitment to goal setting with a specific course of action, anticipation of temptations to slip and relapse, and modification of the environment to make the right choices easier and the wrong choices harder until healthier behavior has become the new normal.
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The key point is that the clinician should not be most motivated person in the room for long. It is the patient who needs to become more concerned that psychological distress, lifestyle, or behavior may be contributing to their medical concerns.
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As we have learned through research on motivational interviewing, the clinician will be tempted to fall back into the “find it and fix it” process, particularly if the problem is serious and the clinician is feeling pressed for time and feels the responsibility to be directive with the ambivalent or resistant patient. Yet research suggests that this is a trap to be avoided.
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Conviction, confidence, and importance are continuous variables (more/less) rather than dichotomous all or none thinking.
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Self-efficacy theory predicts that for individuals to become more committed to change they must become sufficiently convinced both that the change is needed and also that the specific change being considered would be effective in meeting their objective (e.g., “Is losing weight really necessary for me? And If I were able to follow a Mediterranean or a programmed diet, would I really lose significant amounts of weight?”).
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Pulling, in contrast, is communication intended to encourage others to self-reflect and re-evaluate their own ideas and feelings about an issue.
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Pushing entails statements directed from the influencer toward the one being influenced that include advice-giving, teaching, directing, ordering, pleading, threatening, cajoling, lecturing, and criticizing.
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Communication theory differentiates influence styles as either Pushing or Pulling.
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Table 19-2.Stages of change and clinician strategies.
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The goal of each clinician–patient conversation is to encourage movement through the stages.
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Relapse:
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Maintenance:
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Action:
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Preparation/Commitment:
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Contemplation:
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The following descriptions and examples illustrate each of the stages of behavior change: ++ Precontemplation
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Table 19-1.Stages of change and patient characteristics.
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The succession is “spiral” because patients rarely move in a linear path through the stages but instead linger and often relapse into prior stages before eventually achieving maintenance of healthier behaviors.
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The Transtheoretical Model (TTM) (see Prochaska and DiClemente) is perhaps the most researched and applied of all comprehensive approaches to behavior change. It describes the stages through which change progresses as well as the change processes (e.g., insight development, self-reevaluation, behavior modification strategies like changing settings and stimuli and using rewards to encourage constructive behavior) that prove effective at each stage.
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Healing responses may include turning to music, art, religion, literature, nature, humor, or psychotherapy for solace and understanding. Spiritual questions of purpose and meaning in life become more immediate in the face of impending death.
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Under the Medicare Hospice Benefit, hospices provide bereavement support for at least a year to families of patients they have served. They also provide bereavement services to partners and close friends. Often, hospices provide this support to people in their community even if the death did not occur with hospice care.
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Physicians and nurses may want to call in clergy and social workers; each may have something to offer a family that is trying to integrate the shock and loss.
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If patients have lost the capacity to express their wishes and family members are in conflict about a certain plan, it is best to focus on what the patient would have wanted, applying the ethical principle of substituted judgment.
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The clinician needs to communicate clearly with the family members regarding plans for care, prognosis, complications, and who will make decisions should the patient be unable.
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The search for love, a connection to others, and a sense of meaning are essential in helping patients through the dying process.
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CASE ILLUSTRATION 9 A 64-year-old veterinarian, Richard, develops headaches so severe that he can no longer carry on his surgical practice.
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Guidelines for assisted suicide have been published, and clinicians confronted with a reasonable request to end life should refer to these, as well as to colleagues experienced in palliative care, for help. In almost all cases, legally permissible and clinically preferable alternatives can be found.
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A patient’s request to hasten death should be explored in detail. At first, it should be considered a cry for help. It may represent the wish to escape from depression, anxiety, uncontrolled physical pain, shame of dependency, and other psychosocial issues.
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CASE ILLUSTRATION 8 Sara, a bedridden 84-year-old woman with end-stage congestive heart failure, is seen on rounds.
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In assisted suicide, the physician provides the means (such as a prescription for barbiturates) at the request of the patient, but the patient must eventually take (or not take) the potentially lethal medication by his or her own hand.
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Voluntary active euthanasia is the act of intentionally intervening to cause the patient’s death, at the explicit request of, and with the full informed consent of, the competent patient.
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Table 42-2.Last resort interventions: definitions.
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Withdrawing life-sustaining but burdensome treatments, even though the withdrawal leads to death, is also an accepted part of practice based on the patient’s right to bodily integrity.
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CASE ILLUSTRATION 7 Marvin is a 63-year-old man with amyotrophic lateral sclerosis who has been on a respirator at home for one year.
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Patients who recover from delirium and coma sometimes report experiences that range from nightmarish, terrifying visions, on the one hand, to very pleasant out-of-body travel or visions of light and angelic beings on the other. Some may not be able to remember anything about the experience. Occasionally, the disorientation becomes profound and the sense of the world is lost. ++
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CASE ILLUSTRATION 6 Caleb, a 101-year-old rugged dairy farmer, has become partly deaf and then blind in the last 5 years of his life but remains alert and communicative.
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Patients have the right to forgo therapies such as intravenous fluids, nasogastric feeding, and supplemental oxygen, among others. Documentation of these choices is vital if the patient does not wish to undergo treatments and can be done on the MOLST form.
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The notion that being resuscitated from cardiopulmonary arrest will not add appreciably to the quality and/or quantity of life is an open acknowledgment that death might be near—and that reversing the dying process is not within the power of medicine.
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The “do-not-resuscitate” (DNR) order refers to the withholding of CPR, specifically closed-chest cardiac massage, defibrillation, and artificially supplied respiratory support. For most patients with a terminal disease, CPR is ineffective, and its harshness makes it a cruel, expensive, technological death ritual. Many studies have shown that CPR provides no increase in out-of-hospital survival for patients with progressive multisystem disease, particularly patients with advanced cancers and renal failure.
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Advance directives are formal documents that direct health care decisions should patients lose the capacity to speak for themselves in the future.
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There are two types of advance directives: living wills and health care proxies (also called durable powers of attorney). ++
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Invasive interventions that exceed the usual boundaries of hospice care but that extend meaningful life and improve quality of life are sometimes appropriate even within a hospice approach, as long as the patient consents. Remaining flexible in the face of changing, difficult situations and allowing the patient’s goals to guide the treatment as much as possible permit the clinician to hope along with the patient for a death with as little meaningless suffering as possible.
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CASE ILLUSTRATION 5 Rhea, a 64-year-old woman with metastatic breast cancer, is on high-dose long-acting morphine because of bone pain.
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CASE ILLUSTRATION 4 Max, a 63-year-old, recently retired, and previously healthy man, develops abdominal pain and is found to have widely metastasized colon cancer.
He is told to have 6-12 months to live. Max and his wife go to a different clinic for holistic treatment, but they ghost them after the visit. He goes back to the original clinic and recieved paalliative care before he passes.
Providing ranges of survival times and allowing for outliers on either end is better than predicting an exact amount of time. (“The average person with your illness will live two to six months. It could be longer, and we will try to make that happen, but it could also be shorter, so you may want to make sure everything is prepared just in case things don’t go as we hope.”)
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CASE ILLUSTRATION 3 At 68 years old, Albert has severe end-stage emphysema from years of smoking, severe mitral regurgitation, congestive heart failure, cardiac arrhythmias, and alcoholism.
He bullied his wife for 40 years, does not want CPR or respirator care. He yells at healthcare professionals and family for him being sick, blames medication. Eventually reveals he's afraid to die, particularly being buried alive. He receives medication that helps him calm down but dies of rising CO2 later on
For some, dying may be a time for personal growth, reflection, and meaning, but for others, personal factors and emotional reactions block an acceptance of death.
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CASE ILLUSTRATION 2 Carlos, a 70-year-old man, has been diagnosed with advanced hepatocellular carcinoma.
He's referred to hospice, responds very little to questions about death. He becomes bed bound, has routine visits to his home where he passes with his family.
Progressive declines initially may be treated as another form of bad news, but they also potentially provide the opportunity for enhanced meaning and control in the dying process.
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Table 42-1.End-of-life issues to be discussed with patients.
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This sadness, which may be a way of preparing for death, has been called preparatory or anticipatory grief.
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Hospice programs provide comprehensive care to dying patients, with a multidisciplinary team of nurses, physicians, social workers, clergy, and volunteers. These programs, which accept only patients who are more likely than not to die in the next 6 months and are willing to forgo disease-directed therapies and hospitalizations, help patients and their families live as fully as possible by providing quality palliative care.
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The advantage of hospice programs is the expertise brought to techniques of palliative care by the multidisciplinary staff, as well as the added support for patient and family at home, including payment for palliative medications and medical equipment.
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Unlike Medicare-sponsored hospice programs, palliative care does not require patients to give up on aggressive treatment of their underlying disease, to accept a prognosis of less than 6 months, or to accept palliation as the central goal of therapy. Thus, it allows “hospice-like” treatments to be made available to those seriously ill patients who want to continue some or all disease-directed treatments.
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This “both/and” approach has been one of the most important conceptual breakthroughs for palliative care, for it allows quality-of-life issues to be addressed for all seriously ill patients, not just those who are referred to hospice.
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CASE ILLUSTRATION 1 Ella, a 71-year-old woman
Ella has a chest film and expects lung cancer. She has lung tumor and states that if she becomes too ill, she wants to stop treatment. She receives DNR and is referred to hospice where the main goal is to relieve her suffering.
Figure 42-1. The place of palliative care in the course of illness.
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Enhancing the quality of life for those afflicted with serious chronic illness is the cornerstone of the rapidly developing specialty of palliative care.
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Patients with undetected trauma histories are often seen as “difficult” or “hostile,” frequently are late or miss appointments, are often in crisis, have poor self-care, and chronic pain. Such patients also may be labeled as “noncompliant,” with seemingly intractable health behavior problems.
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When trauma-focused psychotherapy is not available, national guidelines recommend pharmacotherapy, in particular sertraline, paroxetine, fluoxetine, or venlafaxine as first-line monotherapies.
Pharmacology
In addition to the misuse of substances, another common comorbidity of PTSD is insomnia.
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Chronic pain, smoking, and obesity are also common comorbidities with PTSD.
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Other primary prevention strategies for primary care practices include support for new parents, support for home visiting programs, and universal preschool options, and firearm access reduction.
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In addition to risk reduction strategies, characteristics that promote resilience in survivors such as self-esteem, trust, humor, internal locus of control, secure attachments, and social relationships, as well as a personal sense of safety, religious affiliation, strong adult role models, and use of existing resources can be reinforced by primary care clinicians.
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Table 41-3.First steps to trauma-informed primary care.
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Unlike recent trauma, disclosures of past trauma do not require an immediate intervention. Rather, clinicians can express empathy (“I’m so sorry that happened to you. You didn’t deserve that”) and provide information about the availability of services to help cope with and heal from past trauma (“I am available to talk more with you about that.
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An appropriate response to recent IPV affirms that the patient does not deserve to be treated in this way and expresses concern for his/her safety. It also typically also includes a “warm handoff” to a domestic violence agency by telephone and/or to an onsite psychosocial team member who can construct a safety plan; lethality assessment, referrals for safe housing, legal, police, and other community resources; individual and/or group therapy; and peer support.
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Figure 41-1. Trauma-informed health care.
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PTSD symptoms are grouped into four distinct clusters: re-experiencing the trauma (memories, nightmares, flashbacks), avoidance (emotional/cognitive vs. situational), negative changes in thinking/mood (not remembering aspects of the trauma, changes in beliefs about self/others/the world, self/other-oriented blame, persistent negative emotions, anhedonia, isolation, difficulty experiencing positive emotions), and arousal (sleep disturbances, irritability/anger outbursts, exaggerated startle, hypervigilance, attentional disruption, self-destructive behavior).
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When referrals are not available for your patients, primary care clinicians can be reasonably confident in their diagnosis of posttraumatic symptomatology and need for trauma-focused treatment referral when a patient:
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A score of 3 or more on the PC-PTSD-5 confers a high likelihood of trauma-related psychological distress and/or PTSD.
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Table 41-2.The Primary Care PTSD Screen for DSM-5.
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The most common forms of posttraumatic psychopathology include acute stress disorder (ASD) and posttraumatic stress disorder (PTSD).
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Patients with trauma exposure commonly present to primary care and other settings with seemingly unrelated acute or chronic physical and mental health conditions at much higher rates than patients without trauma exposure.
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Table 41-1.Four steps to inquire about trauma.
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Techniques described by Dr. Leigh Kimberg as the “Four C’s” can help prepare you to inquire about, and respond to, recent or past trauma:
Four C's
Examples of patient education include: posters and flyers in the waiting area, brief informational pamphlets given to patients when taking their vital signs, and invite conversations as part of routine practice and/or when trauma-related conditions are discussed.
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Demographic factors such as female gender, age, socioeconomic status, and African American race often are thought of as nonmodifiable risk factors, but it is increasingly clear that societal response to race, gender, or age, and the resultant chronic stress, may create the actual risk in these populations.
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More than one-third of U.S. women experience stalking, physical violence, and/or rape from an intimate partner during their lifetimes. One in five men experiences sexual violence in their lifetimes.
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Individuals who reported four or more ACE categories had 2 times the rates of lung and liver disease, 3 times the rate of depression, 3 times the rate of alcoholism, 11 times the rate of intravenous drug use, and 14 times the rate of attempting suicide than those who reported ACE scores of 0.
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The study revealed a strong dose–response relationship between childhood trauma and adult heart, lung, and liver disease; depression; substance abuse; obesity; diabetes; sexually transmitted infection risk; and intimate partner violence (IPV).
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Notably, 25% of women and 16% of men reported having experienced childhood sexual abuse
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The Substance Abuse and Mental Health Services Administration (SAMHSA) defines trauma as “an event, series of events, or set of circumstances that is experienced by an individual as physically or emotionally harmful or threatening and that has lasting adverse effects.”
Trauma definition
f the communication of serious news does not go well, misunderstandings can ensue, causing increased conflict between providers and patients and families, which has been shown to lead to poor quality decision making.
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Table 3-2.Ways to explore cultural beliefs in discussing bad news
What do you think might be going on? What do you call the problem?
What do you think has caused the problem?
What do you think will happen with this illness?
What do you fear most with this illness?
Would you want to handle the information and decision making, or should that be done by someone else in the family?
In some cultures, disclosure of truth is believed to cause bad outcomes, and nondisclosure can be protective and benevolent.
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Hope often initially focuses on outcomes that are strongly desired and reflect individuals’ varying beliefs, values, and sense of possibility.
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Physicians who focus the relationship on hope alone may feel as if they are being dishonest with the patient and may withdraw from the relationship as the patient becomes sicker.
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These two strategies, hoping for the best and preparing for the worst, need not be mutually exclusive. Hoping, while simultaneously preparing, minimizes the weakness of each strategy on its own.
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Specific hope is the state of desiring a specific possible event or future state of affairs, called the hope object.
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How much stress a physician experiences prior to sharing the news is exacerbated when the physician is inexperienced, when the patient is young, and when there are limited prospects for successful treatment. Physicians may feel uncertain about how the patient will
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There may be a reluctance to deliver serious news, known as the “mum effect,” that may result in the physician holding onto the serious news for a prolonged time prior to contacting the patient.
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Providers must be aware of their personal beliefs about illness, death, and dying prior to sitting down with the patient, to ensure that they are not inadvertently pressuring patients to respond in a certain way.
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This model of decision making is the norm in Western culture, but not in all cultures.
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Research and anecdotal information remind us that many patients do not often remember most of the initial serious news discussion once the diagnosis is spoken.
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Present the possible treatment options in small bits and elicit patients’ values and preferences as it relates to the possible treatment options.
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Doctors consistently overestimate survival in terminally ill patients, especially those who have a short life expectancy.
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Step 6, the final step of the SPIKES protocol (Set goals)
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A good surrogate expression for “I’m sorry” is an “I wish” statement. “I wish I had better news for you” allows the physician to walk in the patient’s shoes while acknowledging that the news is unlikely to change.
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When giving serious news to a patient or family, generally avoid apologizing unless you have clearly made a mistake that you are ready to acknowledge.
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If a physician is feeling anxious while anticipating a response from a patient after having given serious news, this may represent the physician’s own response and not necessarily a guide to how the patient is feeling (countertransference).
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However, if an empathic response is done without sincerity or when a patient is not receptive, it can end up being harmful to a therapeutic relationship.
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An approach to responding to patient emotion.
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Sometimes patients may have to deal with strong negative emotions (see next section) after hearing serious news before they are able to see hope. But even in circumstances where there is no further effective treatment, one can potentially be hopeful for a good quality of life moving forward or for other important personal or family outcomes.
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Step 1 of the six-step SPIKES protocol (Set up the interview)
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Step 5 in the SPIKES protocol (Emotions)
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A good rule of thumb along the lines of “ask, tell, ask” is to give at most three pieces of information at a time before checking for understanding.
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Excessive bluntness must be avoided (“There is nothing we can do to treat this cancer”) to keep patients feeling engaged in the conversation and to avoid inciting a feeling of isolation and anger—but one should try to gauge what and how much additional information is given by soliciting what additional questions the patient and family may have.
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Step 2 of the SPIKES protocol (Perception)
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Step 4 (Knowledge)
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Step 3 of the protocol (Invitation)
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Most patients indicate during research studies that they want as much information as possible about their illness, though they may not express their full desire to providers (and they may not retain the details of what has been shared if they have a strong emotional response to the news).
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Ask what the patient and family know and what they want to know. Some patients may choose less-than-full disclosure in regard to their medical conditions, and you cannot know without asking.
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In addition to the optimal physical setting, physicians should prepare for the conversation by finding out the medical information necessary to answer any anticipated questions. Talking to consultants about specific diagnoses, test results and treatment options in advance will help when formulating a plan with the patient.
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The space chosen for this purpose should be private, quiet, comfortable, and convenient for everyone involved. Identify the key participants that should be present, including family or friends who the patient identifies as being close supports, as well as practical additions to the team, such as nurses, interpreters, social workers, and consultants who know the patient well.
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Table 3-1.The SPIKES protocol for delivering bad news.
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Patient-centered communication is an approach in which attention is placed on using verbal and nonverbal behaviors to establish partnerships with patients.
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Patients will often feel encouraged to participate in difficult decision making when they are connecting with their physician, which can result in higher quality medical decision making.
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In one survey, only 5% of oncologists said that they learned to give serious news through a formal teaching program; most had either learned by sitting in on other clinicians giving such information or had no formal teaching at all.
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Prior literature in this area describes these conversations as “breaking bad news.” However, in a qualitative study from 2011 on this topic, patients did not like clinicians judging what was considered “bad” news, and valued framing the news as something to work through with the provider, rather than just labeling it as “bad.”
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Bad news is defined in the literature as any information likely to alter drastically a patient’s view of his or her future.
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In 1990, the data showed a dramatic upward trend in disclosure with 97% of surveyed physicians disclosing an unfavorable diagnosis to their patients.
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In 1961, 90% of physicians preferred not to share a cancer diagnosis with their patients.
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In 1847, when the American Medical Association (AMA) published their First Code of Medical Ethics, they agreed, stating that “The life of a sick person can be shortened not only by the acts, but also by the words or manner of a physician. It is, therefore, a sacred duty to guard himself carefully in this respect, and to avoid all things which have a tendency to discourage the patient and depress his spirits.”
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In Decorum, Hippocrates wrote, “… conceal most things from the patient while you are attending him. Give orders with cheerfulness and serenity, turning attention away from what is being done to him [because] a forecast of what is to come can cause a turn for the worse.”
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Clinicians should attempt to understand the role that the symptoms play in the patient’s family and social systems to gain insight into why the symptoms persist despite the lack of a somatic etiology.
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Data on the efficacy of using medications to treat somatic symptom disorders is limited; to date there are few randomized, controlled studies. However, there have been several small, open studies demonstrating the effectiveness of selective serotonin reuptake inhibitors (SSRIs) such as fluoxetine, sertraline, and escitalopram; serotonin norepinephrine reuptake inhibitors (SNRIs) such as venlafaxine; and other antidepressants classified separately (mirtazapine) in reducing somatic complaints, depressive symptoms, and improving overall assessment of health.
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Table 29-3.Management of somatic symptom disorder.
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Unfortunately, many patients with somatic symptom disorders may not be enthusiastic about exploring unconscious conflicts. In general, psychodynamic psychotherapy is a longer-term, time-intensive approach that requires a referral to a specialist and a significant commitment from the patient.
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Cognitive behavioral therapy (CBT) has been studied as a means of addressing medically unexplained somatic symptoms. This treatment is based on the theory that incorrect beliefs about bodily functioning underlie these symptoms or produce much of the dysfunction.
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Psychodynamic psychotherapy is based on the assumption that the individual is experiencing internal emotional conflicts and that the associated emotions cannot be identified or expressed.
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Further, a consultation model in which the patient is asked to see the mental health provider for one or a few visits to “advise and help the primary care provider do a better job” is often more acceptable to patients than a referral for ongoing treatment.
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Another method for treating patients with somatic symptom disorders in the primary care setting is for practitioners to teach patients to reattribute and relate physical symptoms to psychosocial problems.
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A novel treatment for somatic symptom disorders involves the use of a “written self-disclosure protocol.”
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Moreover, patients learn that they will receive this care and attention even without new symptoms or exacerbations of existing symptoms. The clinician may also ask patients when they want to return for the next visit. This provides them with a sense of control, and over time many patients will suggest lengthening the interval between appointments.
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The practitioner should never challenge the reality of the patient’s physical symptoms. Somatic symptom disorder is an unconscious process, and therefore the somatic complaints are very real to the patient.
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Medical providers should avoid trying to convince the patient that the symptoms are psychological in origin. They should also avoid the use of psychological labels (e.g., depression, anxiety).
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Another management suggestion is to have the provider evaluate the patient in an appropriate manner to rule out somatic causes of their symptoms.
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*Experts suggest that the phrase “Is there something else?” is preferred over “Is there anything else?”
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Instruments such as the self-administered Patient Health Questionnaire (PHQ), which are designed for use in primary care settings, can help the provider diagnose somatic symptom disorders as well as depression, anxiety, eating disorders, and substance use disorder.
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The clinical interview can be helpful in establishing the presence of psychiatric illness as well as in communicating to the patient that the clinician is taking an active interest in the individual’s life.
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As with all of medicine, the first step in evaluating the patient with multiple somatic complaints is a detailed and thorough history of the presenting problem.
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Factitious disorder is included in the category of somatic symptom and related disorders. It is diagnosed when the clinician determines that the symptoms are consciously or voluntarily induced or exaggerated. However, in these individuals there is no discernible external incentive, such as financial compensation, to produce the symptoms.
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Table 29-2.Abnormal illness-affirming states
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Patients with psychotic disorders, such as schizophrenia, may also present with multiple somatic complaints. In contrast to the concerns in the somatic symptom disorders, psychotic symptoms tend to be bizarre or completely irrational (e.g., “My insides are rotting” or “I have pain from the dinosaur eggs in my stomach”).
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Whereas the somatic symptoms of the somatic symptom and related disorders tend to be chronic, the physical complaints in depression exist only in the presence of the mood symptoms.
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Several psychiatric disorders have been associated with somatic symptoms and should be considered when evaluating a patient who has physical complaints.
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In evaluating patients, it is important to remember that the onset of multiple physical symptoms late in life is almost always due to a general medical condition; somatic symptom disorders generally start decades earlier.
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Research has consistently demonstrated that individuals with somatic symptom disorders have worse health outcomes, physical functioning, and psychological well-being than those patients who do not manifest these symptoms.
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One study estimated that patients with somatic symptom disorders generate medical costs nine times those of the average medical patient.
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Although studies have demonstrated there is no systematic pattern of cultures which are more or less likely to have somatic symptom disorders, it appears that patients who lack an ongoing relationship with a stable provider are more likely to have a greater number of somatic symptoms.
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Research has also shown that 50–80% of patients who have an anxiety or depressive disorder initially present to health care providers with physical symptoms
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his view begins with the clinician abandoning the either–or categories of “physical” and “psychological.” This dichotomous framework leads to interactions in which patients feel that they and their symptoms are being discounted by the clinician and conclude, “The doctor’s saying it’s all in my head.”
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Although the western medical model focuses on the biological aspects of disease, it often ignores the psychological and sociocultural facets of the patient’s experience. In addition, this model, often very effective for understanding and treating acute disease processes, may fail to explain much of the complexity of chronic illness.
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Using the biopsychosocial model, illness can be understood as occurring along a spectrum with disorders characterized by predominantly somatic problems at one end and disorders with predominantly psychological or social manifestations at the other (see Chapter 36).
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Figure 29-1. Symptom amplification.
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The clinician’s task in these meetings is to correctly recognize which of the patient’s somatic complaints represent cultural idioms of emotional distress.
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According to the sociocultural perspective, individuals learn to express disease and distress in culturally sanctioned ways. In any culture, the expression of certain bodily symptoms and illness behaviors are encouraged whereas others are discouraged.
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CASE ILLUSTRATION 4
Mr. C is a 53-year-old man who worked as a manual laborer. He had always been in good health. One day, while lifting a particularly heavy item, he experienced pain on the right side of his chest. A colleague said that his father had a similar experience and died of a heart attack shortly thereafter. Mr. C became focused on the idea that he has heart disease, and began visiting a number of emergency rooms, primary care physicians, and cardiologists. His evaluations were always completely negative. However, his concern has persisted and he now presents to a new clinician.
The processing of bodily information gradually becomes colored by the belief that the person has a disease, and this can result in the affected individual embracing the sick role.
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According to cognitive behavioral theorists, symptoms of somatic symptom disorders arise from incorrect beliefs about bodily sensations, for example, the belief that mild gastroesophageal reflux (or panic symptoms) represents myocardial ischemia.
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CASE ILLUSTRATION 3
Mrs. G is a 51-year-old woman who had suffered from abdominal pain and progressive loss of function over the last 1 ½ years. She had failed conservative management and was admitted to the hospital for an exploratory laparotomy. However, there were no organic findings to explain her symptoms. Psychiatric consultation was requested to evaluate for a psychological component to her pain. At evaluation, Mrs. G denied any psychological stressors, but her husband shared that around the time of the onset of her symptoms, Mrs. G’s mother, with whom she is very close, had moved out of state to care for another daughter who had become ill. Mrs. G was referred for psychotherapy to explore this perceived loss and to explore alternatives for support. Over the course of this treatment, Mrs. G’s abdominal pain resolved.
A four-category model has been proposed, which describes four different types of attachment: secure, preoccupied, dismissive, and fearful. In particular, research examining the role of attachment style and its link to somatic symptom disorder and subsequent health care utilization has found that patients with preoccupied attachment (where the individual tends to idealize others, is less self-reliant and needs more reassurance) and fearful attachment (where the individual may be less trusting of others as well as less self-reliant) are more likely to be high in somatic symptom reporting and are higher users of medical resources.
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Additional research has examined the inability of individuals with somatic symptoms to habituate to novel stimuli.
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It is hypothesized that abuse places individuals at risk for the types of internal conflicts that result in somatic symptom disorders. For example, women who have suffered sexual abuse in childhood have increased rates of chronic pelvic pain when compared with those without a history of abuse.
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CASE ILLUSTRATION 2
Mr. B is tired, weak, nauseated, along with chest pain and dizziness. He was worried about possible toxicity and was not relieved by other explanations. He went to find care elsewhere
Medically unexplained syndromes have persisted as clinical problems for practitioners. Patients often present with many symptoms that are not associated with abnormalities demonstrable by physical examination or laboratory or radiological studies. The symptoms are often clustered together as syndromes with a variety of proposed etiologies, including environmental exposures, infections (e.g., chronic Lyme (Borrelia burgdorferi) disease, Candida, Epstein–Barr virus), or multiple chemical sensitivity.
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Table 29-1.Somatic symptom and related disorders.
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But if they lie for some form of financial or material gain, this is considered “malingering”
Malingering
In other patients, the process may be more persistent, and the symptoms may be disabling. In yet others, somatic symptoms may be a more culturally appropriate expression of other psychiatric disorders like depression or generalized anxiety.
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The term somatic symptom disorder (SSD) as defined in the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5), is broadly characterized by somatic (physical) symptoms that are either very distressing or result in significant disruption of functioning, as well as excessive and disproportionate thoughts, feelings, and behaviors regarding those symptoms.
SSD
CASE ILLUSTRATION 1
Patient comes in with a complaint that has been tested on for 10 years, explains she still feels it
College students with untreated ADHD often report that despite rereading material multiple times, they cannot remember it.
SO true
Fostering the therapeutic alliance requires developing trust, conveying empathy, and collaborating about treatment goals. Depending on the skills, attitudes, and orientation of clinicians and the systems in which they work, the clinical encounter can increase social distance and exacerbate the effects of vulnerability on health, or it can lead to productive engagement with patients to mitigate or even eliminate the effects of vulnerability on health.
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Health care systems wishing to recruit and retain clinicians caring for vulnerable populations should provide opportunities for clinicians to develop these intrapersonal and interpersonal skills and enhance the clinical resources that allow clinicians to feel successful in this work.
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Clinicians who have been able to sustain therapeutic relationships with vulnerable patients and maintain fulfilling careers in the care of vulnerable populations tend to
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Although clinicians in underserved clinical settings report serving higher proportions of medically and psychosocially complex patients, they are more likely to report a chaotic work environment and less likely to feel in control.
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Fourth, after identifying vulnerability, the clinician should not forget the important step of exploring with the patient, in a supportive and nonjudgmental manner, how the vulnerability may be affecting health and care and how to mitigate these effects.
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Third, in the process of assessment, the clinician should be sensitive to the concerns of patients with respect to shame and stigma.
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For example, in countries with universal health care coverage, lack of insurance simply does not contribute to vulnerability.
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Table 18-3.Resilience factors.
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The first is that in the pursuit of identifying vulnerability, the clinician should be reminded of the importance of simultaneously identifying and acknowledging an individual’s strengths, resilience, and range of resources, such as one’s belief in a higher power or support from a religious community; or the love and support provided by a spouse, friend, or pet.
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Table 18-2.Common pitfalls in assessing for vulnerability.
Failing to recognize the contribution of psychosocial vulnerabilities to the patient’s illness.
Failing to acknowledge vulnerability and to explore how vulnerability may be affecting care.
Failing to address specific vulnerabilities.
Failing to integrate knowledge of vulnerability into treatment plans.
Failing to recognize the shame and stigma associated with vulnerabilities.
Neglecting to identify and acknowledge strengths, resilience, and range of resources.