The story I tell is both of ours, but for now I am the one telling it. In the near future, as Lydia's awareness and ability to tell her life grows, I want her voice to be heard more clearly. Rather than me speaking and writing about her, I hope we will speak and write together. What we can learn about difference by attending to both the child with disabilities and her mother should move us away from the notion that the child is necessarily an "other" to the mother...or vice versa. We need to hear both voices; they need to hear each other; and each must be believed if "difference" is to make a difference
I really like the part about "both voices must be heard" in this paragraph. Many times we are used to "speaking for others", especially in the position of caregivers or educators, as if we know what is best for them. But this paragraph made me realize that true understanding is not to speak for her, but to speak with her. Lydia's growth is not just the growth of a child, but also a process in which a voice is gradually heard by the world. I think the author's respect is particularly touching, and it reminds us to listen - especially those voices that are not easy to be heard.