5 Matching Annotations
  1. Apr 2024
    1. ‘I have to regulate how much energy I use, like, if I have to work then I'm more tired when I get home, but since I know this, I try to rest before leaving home’.

      adults not wanting to understand their limitations due to fear of being looked at as lazy.

    2. ‘I was talking with a friend who also has the same situation and she told me that when she went out with friends and didn't know if there was a toilet nearby, what she did was not to eat, so that she wouldn't want to go to the bathroom, so that's what I do too’.

      fear of embarrassment. having someone to talk to about their experiences that can relate to.

    3. self-protection was accompanied by an open distrust on the health system.

      self-protection leading to distrust on the health system turns to a feeling of hopelessness.

    4. necessary to control their emotional situation and avoid stress so as not to worsen their illness: C10 ‘I suffer from stress, which I try to control’;

      giving crohns disease patients tools to control their stress at different stages of life.

    1. However, Crohn’s disease is not a condition for which there is a regular screening tool. The diagnosis is based on symptoms leading to testing. One test procedure is a colonoscopy (a flexible tube with a camera is inserted through the anus to visualize the colon), in which biopsies (tissue samples) are taken to be analyzed in the lab.

      explaining procedures and what will be done to them in order to diagnose or teat their disease. How I felt duing this process. What was my understanding of what was going on?