as researchers we need to look to those same communities to whom our participants belong. The process of ethical review must be more than either prescriptive or reactive; it must be an ongoing dialogue between the researcher and the communities whose lives and futures the research relies upon and seeks to affect.
The more you continue to speak over these communities, the more you continue to ignore their concerns and suggestions. If researchers are earnest and truly want to help them through their studies, then they should at least be willing to let them lead the way.