On 2015 May 04, Dorothy V M Bishop commented:

This is a very useful study. Thanks. Will be sharing it with colleagues.

Here in the UK we have been concerned with similar issues. We did some surveys using focus groups for those with trisomy X and XYY, and similar topics cropped up.

We have not written this up formally, but we used the information as background when developing materials for parents and for children to help those deciding whether and how to disclose a diagnosis. These are freely available for download here:

http://figshare.com/articles/Booklets_for_parents_and_children_XYY_and_Trisomy_X/1203560

On 2015 May 04, Dorothy V M Bishop commented:

This is a very useful study. Thanks. Will be sharing it with colleagues.

Here in the UK we have been concerned with similar issues. We did some surveys using focus groups for those with trisomy X and XYY, and similar topics cropped up.

We have not written this up formally, but we used the information as background when developing materials for parents and for children to help those deciding whether and how to disclose a diagnosis. These are freely available for download here:

http://figshare.com/articles/Booklets_for_parents_and_children_XYY_and_Trisomy_X/1203560