On 2017 Dec 05, Karen Woolley commented:

Congratulations to Dr Pushparajah on this editorial and congratulations again to her and her colleagues at UCB for generating evidence on the value of making the results of clinical research more accessible to the public via plain-language summaries. http://journals.sagepub.com/doi/abs/10.1177/2168479017738723. Ironically, when clinical research results go public (eg, through a peer-reviewed PUBLIC-ation), the public is rarely involved. This needs to change. Publications should be "of the people, BY the people, FOR the people". We need patients to be engaged - ethically and meaningfully - in the publication ecosystem. We know patients are diverse, but some patients are accessing the peer-reviewed literature for information. We need to work with patients, journal editors, sponsors, and publication professionals to help make the "patient-to-peer-reviewed publication" journey better, easier, and more reliable than their journey to Dr Google.Disclosures: Financial: I am a paid employee of Envision Pharma Group, which provides medical communication services and technology solutions. I have shares in Johnson & Johnson and have been a government-appointed director on the board of 5 hospitals. Nonfinancial: I am an active member and past director of associations that advocate for ethical publication practices. I am a research partner with international patient leaders and advocacy organisations

On 2017 Dec 05, Karen Woolley commented:

Congratulations to Dr Pushparajah on this editorial and congratulations again to her and her colleagues at UCB for generating evidence on the value of making the results of clinical research more accessible to the public via plain-language summaries. http://journals.sagepub.com/doi/abs/10.1177/2168479017738723. Ironically, when clinical research results go public (eg, through a peer-reviewed PUBLIC-ation), the public is rarely involved. This needs to change. Publications should be "of the people, BY the people, FOR the people". We need patients to be engaged - ethically and meaningfully - in the publication ecosystem. We know patients are diverse, but some patients are accessing the peer-reviewed literature for information. We need to work with patients, journal editors, sponsors, and publication professionals to help make the "patient-to-peer-reviewed publication" journey better, easier, and more reliable than their journey to Dr Google.Disclosures: Financial: I am a paid employee of Envision Pharma Group, which provides medical communication services and technology solutions. I have shares in Johnson & Johnson and have been a government-appointed director on the board of 5 hospitals. Nonfinancial: I am an active member and past director of associations that advocate for ethical publication practices. I am a research partner with international patient leaders and advocacy organisations