29 Matching Annotations
  1. Nov 2016
    1. Short duration ~1

      Short, one-second pelvic floor contractions can help with leakage episodes.

      (can keep Kegel if needed, but think some may not understand)

    2. e prepared when you sneeze or cough

      (telling them how to be prepared)

      Be prepared when you sneeze or cough and do a pelvic floor muscle contraction to tell the bladder to hold

    3. When you have the urge to urinate, sit down and perform 4-5 Kegel exercises followed by a deep breath until the urge subsides then make your way to the bathroom

      When you have a strong urge to urinate, calm the bladder by doing 4-5 gentle tighten-and-release actions using the pelvic floor muscles

      (suggested wording, not a have-to)

    4. Empty your bladder at regular intervals (every 2 - 3 hours) before it gets too full to decrease leakage

      Empty your bladder every 2-3 hours to keep if from getting too full and lower chances of leakage

    5. .

      delete period

    6. (More than once per week leakage.)

      suggest to remove

    7. (EBRT or Brachytherapy and moderate/big problem with urinary function)

      suggest to remove

    8. (2 or more pads per day or Moderate/Big problem dripping or leaking urine)

      suggest to remove

    9. These Urinary recommendations are tailored for the following:

      This type of callout/listing of tailoring variables is not common to me, but I do kind of like it. However, I'd remove all of the redundant (stuff in parentheses).

    10. These General recommendations are tailored for the following:For all patients

      I'd remove this block/text entirely. Mostly because we tell participants it's tailored to them and this says everyone. So even if it were applicable to all men dealing with prostate cancer, it in essence is still 'tailored'. so there is no risk of deception in tailoring. I'd delete to avoid confusion or disillusionment.

    11. This page contains tips and resources specifically tailored for you, based on what you told us about yourself, your treatments, and how you have been doing according to the Symptom Tracker.

      Grade Level: 14.9

    12. (For all patients)

      Remove

    13. This page contains tips and resources specifically tailored for you, based on what you told us about yourself, your treatments, and how you have been doing according to the Symptom Tracker.

      Grade Level: 7.65

      This page offers tailored tips and resources based on what you told us about your treatments and symptoms.

      Please be sure to discuss any questions or concerns with your health care provider.

    1. My Tips

      After I did the symptom tracker, it took me right back to this page and the "Get Started". It seems like a prompt or direction of clicking on My Tips would be helpful to aid the user experience. I knew I should look at My Tips, but had momentarily forgotten as a pretend user.

    2. Get started Use the link below to begin.

      This seems misleading. I've just finished tracking my symptoms. Why is it prompting me to "get started". I see it says you can use it "as often as you'd like", but it seems that information would be helpful to bold or highlight or have closer to the top of paragraph.

    1. EPIC-26 Questionnaire

      Is the wording to this intro for the survey 'official' or may we edit it?

    1. Men with prostate cancer may experience stress, changes in vitality, or problems with urinary, bowel, or sexual function.

      Grade Level: 8.9

      This tool helps you see how your prostate cancer symptoms compare to those of other men like you. It also offers ways to help you manage those symptoms.

      Men with prostate cancer may experience stress, changes in energy levels, as well as problems with urinary, bowel, or sexual function.

    2. This tool helps you understand how your prostate cancer symptoms compare to those of other men like you and it offers recommendations to help you manage those symptoms. Men with prostate cancer may experience stress, changes in vitality, or problems with urinary, bowel, or sexual function.

      Grade Level: 11.66

    1. Explore your values, your preferences, and the current medical knowledge to help you discuss your treatment options with your doctors.

      Grade Level: 12

    2. Learn about symptoms that are common in men with prostate cancer, and about ways to manage and improve these symptoms

      Grade Level: 6.40

      Learn about ways to manage and improve symptoms that are common in men with prostate cancer.

    3. Grade Level: 12

    4. Grade Level: 8

      Good, but think it could read a little more simply.

    1. When you agree to the Terms of Use, you can continue with the registration process.

      The text edit for this Terms of Use is testing at a Grade Level of 10, as a whole. However, individual sentences test lower 6-8). The multi-syllabic words and unrecognized words (eg-Movember, TrueNTH) add to the increase in reading level. But all in all, I think the edit may read a little clearer.

    2. Thanks for signing up for TrueNTH. First, please review the terms of use to access the TrueNTH tools: The TrueNTH portal and tools are offered free of charge to you by the Movember Foundation. Your data belongs to you (see our Privacy Policy). You may be offered the ability to share your data with Movember researchers, or with your doctors or other health care providers.  You can choose to do so, if you want, either during registration or later.  We hope you will, because we are trying to help you in your individual journey with prostate cancer, and because we are trying to improve the journeys of all men and their loved ones.  Part of helping your individually means helping make your communication with your health care provider as easy and useful as possible.   Part of helping others is letting your experience contribute anonymously to what we know about all men with prostate cancer. However, even if you choose not to share any data, you are welcome to register and use this site . When you agree to the Terms of Use, you can continue with the registration process.  

      Improving your own experience, journey, and communication with health care providers may include the chance for you to give back. You can do this by sharing your data with Movember researchers. Doing so can add value to your own journey as well as benefit the greater community of men like you.

      Using the TrueNTH portal does not depend on you agreeing to share any of your information. That is your decision. If you do, the TrueNTH team will remove any personal information (name, email address, etc.). Only data relevant to the prostate cancer journey would be used.

      After you agree to the Terms of Use, you can continue with the registration process.

    3. Part of helping your individually

      wording/typo

    4. e .

      spacing typo

    5. The TrueNTH portal and tools are offered free of charge to you by the Movember Foundation.

      Grade Level: 10 -> 8.28

      The Movember Foundation offers these TrueNTH portal and tools to you free of charge.

    6. Thanks for signing up for TrueNTH. First, please review the terms of use to access the TrueNTH tools:

      Grade Level: 3.6

      Thank you for signing up for TrueNTH. Please review the terms of use before accessing the TrueNTH tools.

    7. Grade Level: 12.73