5 Matching Annotations
  1. Feb 2024
    1. WelcomeElsie Paul welcomes readers to this digital book.
      1. Elsie and her team have created a video conveying the message of the importance of listening. The video emphasizes the need to listen to our elders, teachings, ancestors, land, and language. It is not enough to just listen; we must act upon those teachings as well. Personally, I enjoyed watching and listening to Elsie. It felt like I was sitting with an Elder, having a cup of tea.
    2. And she got very ill, very sick there, within a few months. And by the time they let my grandparents know – they went to pick her up by canoe to Sechelt. They got her home, and she was so weak they had to pack her on and off the boat. And within a few days she had died.

      This passage evokes so much sadness in me. While we know that the children in residential schools experienced abuse, it always hurts to know they were so neglected that they were left on their deathbeds. My late grandfather Xey’telq, Dr. Ray Silver Sr. from Semà:th, attended Coqualeetza and then Port Alberni Residential School with his brother, Dalton. My grandpa was sent home with his brother in a tiny wooden box, not knowing how he died. Elsie’s story of her great-aunt, neglected during her time in residential school, reminds me of this. Still, I am also glad that she is not a lost child buried in an unmarked grave somewhere, like so many others who did not survive residential schools.

  2. Dec 2022
    1. I came here after recalling a critique by Bessel van der Kolk's "The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma" regarding the disease model and it's negative impact on adequately helping people with trauma. van der Kolk's critique was similar to Marc Lewis' critique of the disease model as it applies to addiction from "The Biology of Desire: Why Addiction Is Not a Disease". This made me wonder what the term "disease" actually means and whether or not some general consensus existed within the medical community. This article suggests there is no such consensus.

      This article is by Jackie Leach Scully who holds a "PhD in cellular pathology, University of Cambridge; BA (Hons) in biochemistry, University of Oxford; MA in psychoanalytic studies, Sheffield University".

      Scully does several insightful things in this paper the following are the ones that were most salient to me upon the first read: - distinguishes "disease" from "disability" - contrasts the "social model" and "medical model" perspectives on "disability" - The "medical model" referred to here is probably what Lewis & van der Kolk are critiquing as the "disease model".<br /> - Are the "medical" and "disease" model different? - the social model seems to have arisen as a response to the inadequacy of the medical model

          - "The social model's fundamental criticism of the medical model is that it wrongly locates 'the problem' of disability in biological constraints, considering it only from the point of view of the individual and neglecting the social and systemic frameworks that contribute to it. The social model distinguishes between impairment (the biological substrate, such as impaired hearing) and the disabled experience. In this view the presence of impaired hearing is one thing, while the absence of subtitling on TV is quite another, and it is the refusal of society to make the necessary accommodations that is the real site of disability. A social model does not ignore biology, but contends that societal, economic and environmental factors are at least as important in producing disability."
      
      • brings up a subtle point that there are two jumps "from gene to phenotype, and from phenotype to experience" and that some of the arguments mentioned "suggest that the 'harm' of the impairment is not straightforwardly related to phenotype. What ought to concern us about disease and disability is the disadvantage, pain or suffering involved, and in a sense the impairment is always a kind of surrogate marker for this experience."
  3. Feb 2021
  4. Nov 2016