- Oct 2024
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plato.stanford.edu plato.stanford.edu
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the theory involves scrutinizing not bodily or mental impairments but the social norms that define particular attributes as impairments, as well as the social conditions that concentrate stigmatized attributes in particular populations.
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- Jun 2024
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ualr.edu ualr.edu
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Steps Toward Universal Design of Online Courses
UA - Little Rock
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- Dec 2022
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www.ncbi.nlm.nih.gov www.ncbi.nlm.nih.gov
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I came here after recalling a critique by Bessel van der Kolk's "The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma" regarding the disease model and it's negative impact on adequately helping people with trauma. van der Kolk's critique was similar to Marc Lewis' critique of the disease model as it applies to addiction from "The Biology of Desire: Why Addiction Is Not a Disease". This made me wonder what the term "disease" actually means and whether or not some general consensus existed within the medical community. This article suggests there is no such consensus.
This article is by Jackie Leach Scully who holds a "PhD in cellular pathology, University of Cambridge; BA (Hons) in biochemistry, University of Oxford; MA in psychoanalytic studies, Sheffield University".
Scully does several insightful things in this paper the following are the ones that were most salient to me upon the first read: - distinguishes "disease" from "disability" - contrasts the "social model" and "medical model" perspectives on "disability" - The "medical model" referred to here is probably what Lewis & van der Kolk are critiquing as the "disease model".<br /> - Are the "medical" and "disease" model different? - the social model seems to have arisen as a response to the inadequacy of the medical model
- "The social model's fundamental criticism of the medical model is that it wrongly locates 'the problem' of disability in biological constraints, considering it only from the point of view of the individual and neglecting the social and systemic frameworks that contribute to it. The social model distinguishes between impairment (the biological substrate, such as impaired hearing) and the disabled experience. In this view the presence of impaired hearing is one thing, while the absence of subtitling on TV is quite another, and it is the refusal of society to make the necessary accommodations that is the real site of disability. A social model does not ignore biology, but contends that societal, economic and environmental factors are at least as important in producing disability."- brings up a subtle point that there are two jumps "from gene to phenotype, and from phenotype to experience" and that some of the arguments mentioned "suggest that the 'harm' of the impairment is not straightforwardly related to phenotype. What ought to concern us about disease and disability is the disadvantage, pain or suffering involved, and in a sense the impairment is always a kind of surrogate marker for this experience."
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- Aug 2022
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www.theguardian.com www.theguardian.com
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Henriques-Gomes, L. (2021, September 29). Young Australians with disabilities face significant barriers to getting Covid vaccine. The Guardian. https://www.theguardian.com/australia-news/2021/sep/30/young-australians-with-disabilities-face-significant-barriers-to-getting-covid-vaccine
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www.cbc.ca www.cbc.ca
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Hawthorn, A. (2021, September 26). Like polio, the long-term impact of COVID will be measured in disability | CBC News. CBC. https://www.cbc.ca/news/canada/newfoundland-labrador/apocalypse-then-disability-1.6187990
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- Apr 2022
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www.imperial.ac.uk www.imperial.ac.uk
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Imperial News. ‘“Issue of Inequalities” for Long COVID Patients Needs to Be Addressed | Imperial News | Imperial College London’. Accessed 22 April 2022. https://www.imperial.ac.uk/news/232234/issue-inequalities-long-covid-patients-needs/.
Tags
- symptom
- data
- wider society
- is:website
- global challenges
- survey
- imperial college london
- health
- school of public health
- comms strategy
- centre
- fatigue
- health and wellbeing
- inequalities
- lang:en
- COVID-19
- infectious diseases
- science
- long covid
- disability
- academic
- persistent symptoms
- urgence
- patient
Annotators
URL
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What was new was a realization for me that I didn’t have a very good language to defend the value of my life, the worthiness of my life
writing about disability Chloe
- [I] i don't have rich vocabulary to express my ability of my physical (leg) and mental (ADHD) disability in the form of arguments and writing
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- Mar 2022
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psyarxiv.com psyarxiv.com
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Kang, T. S., & Goodwin, R. (2022, January 31). Legal restrictions and mitigation strategies amongst a disabled population during COVID-19. https://doi.org/10.31234/osf.io/8daew
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www.theguardian.com www.theguardian.com
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Tapper, J. (2022, March 5). Covid pandemic sparks steep rise in number of people in UK with long-term illness. The Observer. https://www.theguardian.com/society/2022/mar/05/covid-pandemic-sparks-steep-rise-in-number-of-people-in-uk-with-long-term-illness
Tags
- mental health
- financial support
- lang:en
- COVID-19
- UK
- long Covid
- disability
- health condition
- pandemic
- is:news
- long-term illness
Annotators
URL
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- Feb 2022
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twitter.com twitter.com
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Dr Ellie Murray, ScD 🇨🇦. (2022, February 18). If you have a little one who’s getting a vaccine soon but feeling a bit scared, this new book from @JanZauzmer is quite cute & might help them preview the experience. #VaccinesSaveLives https://t.co/MRngUYWsOJ [Tweet]. @EpiEllie. https://twitter.com/EpiEllie/status/1494695602248200198
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www.nature.com www.nature.com
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Spinney, L. (2022). Pandemics disable people—The history lesson that policymakers ignore. Nature, 602(7897), 383–385. https://doi.org/10.1038/d41586-022-00414-x
Tags
- acute
- pre-existing condition
- ableism
- risk
- neurological symptoms
- pandemic
- policymaker
- long influenza
- disability rights
- chronic
- history
- disablism
- flu
- lang:en
- COVID-19
- hospitalization
- COVID-induced disability
- children
- vulnerable
- morbidity
- brain damage
- long covid
- mortality
- disability
- health economy
- is:article
- policy
Annotators
URL
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www.theatlantic.com www.theatlantic.com
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Yong, E. (2022, February 16). The Millions of People Stuck in Pandemic Limbo. The Atlantic. https://www.theatlantic.com/health/archive/2022/02/covid-pandemic-immunocompromised-risk-vaccines/622094/
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www.cbsnews.com www.cbsnews.com
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A cause of America’s labor shortage: Millions with long COVID. (n.d.). Retrieved February 2, 2022, from https://www.cbsnews.com/news/long-covid-labor-market-missing-workers/
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- Jan 2022
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www.sciencedirect.com www.sciencedirect.com
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Brown, N., Nicholson, J., Campbell, F. K., Patel, M., Knight, R., & Moore, S. (2021). COVID-19 Post-lockdown: Perspectives, implications and strategies for disabled staff. Alter, 15(3), 262–269. https://doi.org/10.1016/j.alter.2020.12.005
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www.theguardian.com www.theguardian.com
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Connolly, K. (2021, December 28). German court rules disabled people must be protected in Covid triage cases. The Guardian. https://www.theguardian.com/world/2021/dec/28/german-court-disabled-people-covid-triage
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- Nov 2021
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psyarxiv.com psyarxiv.com
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Adler, J. M., & Wang, K. (2021). Narrative identity among people with disabilities during the COVID-19 pandemic: The interdependent self. PsyArXiv. https://doi.org/10.31234/osf.io/6724x
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www.nbcnews.com www.nbcnews.com
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Biden says “long Covid” could qualify as a disability under federal law. (n.d.). NBC News. Retrieved November 5, 2021, from https://www.nbcnews.com/politics/white-house/biden-says-long-covid-could-qualify-disability-under-federal-law-n1275044
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- Sep 2021
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www.lifescied.org www.lifescied.org
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Just as normalizing the use of pronouns has been an important step for supporting gender justice, we argue that normalizing access talk is an important step for advancing disability justice in STEM fields. Moreover, we argue that all individuals have access needs, regardless of whether they are disabled or nondisabled.
normalizing use of sharing and checking access needs.
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www.nytimes.com www.nytimes.com
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“I want to show that people need not be limited by physical handicaps as long as they are not disabled in spirit.”
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“I accept that there are some things I can't do. But they are mostly things I don’t particularly want to do anyway. I seem to manage to do anything that I really want.”
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- Jul 2021
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services.aap.org services.aap.org
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COVID-19 Guidance for Safe Schools. (2021, July 18). http://services.aap.org/en/pages/2019-novel-coronavirus-covid-19-infections/clinical-guidance/covid-19-planning-considerations-return-to-in-person-education-in-schools/
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- Jun 2021
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www.eeoc.gov www.eeoc.gov
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What You Should Know About COVID-19 and the ADA, the Rehabilitation Act, and Other EEO Laws | U.S. Equal Employment Opportunity Commission. (n.d.). Retrieved June 29, 2021, from https://www.eeoc.gov/wysk/what-you-should-know-about-covid-19-and-ada-rehabilitation-act-and-other-eeo-laws
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www.migrationencounters.org www.migrationencounters.org
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Thank God for Cook County Hospital [Chuckles]. They don't charge you a thing, but she got the medical treatment that she needed. She had brain surgery. They removed the tumor and she had to be in therapy for a few years in order to gain … she couldn't talk. She didn't have movement in half of her face, so she couldn't speak because her tongue was numb on one side, so she had to have physical therapy. I went with her a couple times because I had to translate. Sometimes they didn't have people who would translate for my mother. At this point, I had already learned English, but she had to practice every single day. Still to this day, there are a few words that she cannot say.
Time in the US, Illness
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- May 2021
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www.ncbi.nlm.nih.gov www.ncbi.nlm.nih.gov
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Andre, F., Booy, R., Bock, H., Clemens, J., Datta, S., John, T., Lee, B., Lolekha, S., Peltola, H., Ruff, T., Santosham, M., & Schmitt, H. (2008). Vaccination greatly reduces disease, disability, death and inequity worldwide. Bulletin of the World Health Organization, 86(2), 140–146. https://doi.org/10.2471/BLT.07.040089
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www.who.int www.who.int
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WHO | Vaccination greatly reduces disease, disability, death and inequity worldwide. (n.d.). WHO; World Health Organization. Retrieved March 5, 2021, from https://www.who.int/bulletin/volumes/86/2/07-040089/en/
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www.healthaffairs.org www.healthaffairs.org
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Ozawa, S., Clark, S., Portnoy, A., Grewal, S., Brenzel, L., & Walker, D. G. (2016). Return On Investment From Childhood Immunization In Low- And Middle-Income Countries, 2011–20. Health Affairs, 35(2), 199–207. https://doi.org/10.1377/hlthaff.2015.1086
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- Apr 2021
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www.theguardian.com www.theguardian.com
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‘If we catch Covid, we die’: UK shielders reflect on still feeling unsafe | Coronavirus | The Guardian. (n.d.). Retrieved April 19, 2021, from https://www.theguardian.com/world/2021/apr/19/if-we-catch-covid-we-die-uk-shielders-reflect-on-still-feeling-unsafe
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- Mar 2021
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www.pnas.org www.pnas.org
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Orenstein, W. A., & Ahmed, R. (2017). Simply put: Vaccination saves lives. Proceedings of the National Academy of Sciences, 114(16), 4031–4033. https://doi.org/10.1073/pnas.1704507114
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- Sep 2020
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www.brookings.edu www.brookings.edu
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In addition to the reading I have done, I would like add that technology can transform the lives of people with disabilities and/or learning challenges.My friend who is blind LOVES technology and uses it to do all kinds of things.
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- Jun 2020
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psyarxiv.com psyarxiv.com
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Asbury, K., Fox, L., Deniz, E., Code, A., & Toseeb, U. (2020, April 21). How is COVID-19 affecting the mental health of children with Special Educational Needs and Disabilities and their families?. https://doi.org/10.31234/osf.io/sevyd
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www.nature.com www.nature.com
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Shew, A. (2020). Let COVID-19 expand awareness of disability tech. Nature, 581(7806), 9–9. https://doi.org/10.1038/d41586-020-01312-w
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twitter.com twitter.com
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Yong, E. (2020, May 23). "Hello! More of you have started following me in the last weeks since I last did this, so let me introduce you to YET MORE people I respect, who've created some pandemic writing that's really stuck with me. (And do check out the original thread below.)" Twitter. https://twitter.com/edyong209/status/1263996750404243462
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- May 2020
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www.thelancet.com www.thelancet.com
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The Lancet Public Health, May 2020, Volume 5, Issue 5, Pages e235-e296. https://www.thelancet.com/journals/lanpub/issue/current
Tags
- elderly
- death
- Iran
- social distancing
- impact
- vulnerable groups
- healthcare
- alcohol
- article
- public health
- Spain
- is:webpage
- modeling
- human rights
- lang:en
- COVID-19
- Europe
- inequality
- China
- France
- isolation
- USA
- publication
- non-pharmaceutical
- immigration
- health literacy
- Italy
- school closure
- UK
- disability
Annotators
URL
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- Apr 2020
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adata.org adata.org
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Reasonable Accommodations in the Workplace | ADA National Network. (n.d.). Retrieved April 29, 2020, from https://adata.org/factsheet/reasonable-accommodations-workplace
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psyarxiv.com psyarxiv.com
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Toseeb, U., Asbury, K., Code, A., Fox, L., & Deniz, E. (2020, April 21). Supporting Families with Children with Special Educational Needs and Disabilities During COVID-19. https://doi.org/10.31234/osf.io/tm69k
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- Oct 2019
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ieeexplore.ieee.org ieeexplore.ieee.org
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BrainHQ, is an online brain-training software also developed by Posit Science. It is the only software available in Greek being used to any portable computing device (tablet, smartphone, etc.) as an application either on Android or on IOS provided in different languages. Undoubtedly, improvement of brain performance can bring multiple benefits to everyday life. Both research studies and the testimonials of users themselves show that BrainHQ offers benefits in improving thinking, memory and hearing, attention and vision, improving reaction speed, safer driving, self-confidence, quality discussion and good mood. BrainHQ includes 29 exercises divided into 6 categories: Attention, Speed, Memory, Skills, Intelligence and Navigation.
In this conference paper the author is discussing about the different methods to interactively help learn people with disability, how their concentration and enthusiasm/motivation increases, if the right tool is used to teach them
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journals.sagepub.com journals.sagepub.com
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espite the potential of emerging technologies to assist persons with cognitive disabilities,significant practical impediments remain to be overcome in commercialization, consumerabandonment, and in the design and development of useful products. Barriers also exist in terms of the financial and organizational feasibility of specific envisionedproducts, and their limited potential to reach the consumer market. Innovative engineeringapproaches, effective needs analysis, user-centered design, and rapid evolutionary developmentare essential to ensure that technically feasible products meet the real needs of persons withcognitive disabilities. Efforts must be made by advocates, designers and manufacturers to promote betterintegration of future software and hardware systems so that forthcoming iterations of personalsupport technologies and assisted care systems technologies do not quickly become obsolete.They will need to operate seamlessly across multiple real-world environments in the home,school, community, and workplace
This journal clearly explains the use of technologies with special aid people how a certain group can leverage it, while also touch basing on what are the challenges which special aid people face financially.
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- Sep 2019
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Local file Local file
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Recommendation to lift staffing cap
The NDIA to lift the staffing cap to employ more NDIA planners and ensure NDIA planners are always used for participants with complex disabilities and/or lives. Where a LAC is the NDIA representative in a planning meeting, these LACs need to ensure they are trained and encouraged to work towards understanding individual needs and goals as opposed > to pre-empting needs based on disability type and therefore misrepresenting the actual needs of the participant.
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- Mar 2019
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unbound.upcea.edu unbound.upcea.edu
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Adult students have a higher incidence of disability and are less likely to seek accommodations than the general student population, so it is critical that institutions of higher education anticipate their needs, especially in online classes.
This article provides statistics about the number of adult learners who learn online with a disability and how these numbers need to be addressed. The author observes that adult learning are least likely to ask for help and it's the designers job to assess their work to make it more accessible. This article provides recommendations on how to become more familiar with technology and what guidelines people should be following. Rating: 10/10 for addressing accessibility among adult learners and providing recommendations.
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onlinelibrary.wiley.com onlinelibrary.wiley.com
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The project reported here aimed to highlight the advantages and weaknesses of web‐based learning for adults with learning disability, and to suggest improvements.
This article reviews challenges faced by adult learners with learning disabilities as it related to online learning. This article discusses how adults with learning disabilities might not adopt new technologies in a productive way and highlights positive and negative aspects of this scenario. Additionally the author provides solutions to identify advantages and disadvantages of online learning for adults. Rating: 9/10 for addressing accessibility and disability concerns among adult learners.
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journals.sagepub.com journals.sagepub.com
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Developmental disabilities
developmental disabilities
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- Feb 2019
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My disabled son’s amazing gaming life in the World of Warcraft
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Annotators
URL
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static1.squarespace.com static1.squarespace.com
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as the names of colours to a blind man, or sounds to a deaf man, need not here be mentioned.
Ah, a disability connection to be made here. So, words don't necessarily serve all humans, but are considered natural? An interesting turn to take, Locke.
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static1.squarespace.com static1.squarespace.com
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Defect
Language similar to that of Hume, here and in the "General Orations" remark below (where generalities are more likely to be universally true than particulars)
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static1.squarespace.com static1.squarespace.com
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perverts
Word choice throughout is noteworthy (and charged): perverts, deforms, defective...
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- Jun 2018
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www.technologyreview.com www.technologyreview.com
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I had a learning disability when I was in school. But I could do factory work. Factory work is what we did. Now robots do that job. What happens to people like me?
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- Dec 2017
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All Technology Is Assistive
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www.theatlantic.com www.theatlantic.com
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The White Cane as Technology
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- Apr 2017
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waitbutwhy.com waitbutwhy.com
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This is why people can play the piano with their fingers but not with their toes.
That does not really explain why there are very talented musicians that have limb defects, but I suppose that similar to a blind person being able to hear better, their brains adjust (like complex-adaptive systems do) and reassign a new input-element (e.g. the feet) to a left-over motoric system(e.g. the hands).
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- Mar 2017
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static1.squarespace.com static1.squarespace.com
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those who fail are punished by the dislike or neglect of society.
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static1.squarespace.com static1.squarespace.com
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nature
Words having naturally no signification, the idea which each stands for must be learned and retained, by those who would exchange thoughts, and hold intelligible discourse with others, in any language. But this is the hardest to be done where,
First, The ideas they stand for are very complex, and made up of a great number of ideas put together.
Secondly, Where the ideas they stand for have no certain connection in nature; and so no settled standard anywhere in nature existing, to rectify and adjust them by.
Thirdly, When the signification of the word is referred to a standard, which standard is not easy to be know.
Fourthly, Where the signification of the world and the real essence of the thing are not exactly the same.
These are difficulties that attend the signification of several words that are intelligible. Those which are not intelligible at all, such as names standing for any simple ideas which another has not organs of faculties to attain; as the names of colours to a blind man, or sounds to a deaf man, need not here be mentioned.
In all these cases we shall find an imperfection in words; which I shall more at large explain, in their particular application to our several sorts of ideas: for if we examine them, we shall find that the names of mixed modes are most liable to doubtfulness and imperfection, for the two first of these reasons; and the names of substances chiefly for the two latter. (818)
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naturally
See Jay Dolmage's book Disability Rhetoric
Is this Elaboration an attempt to think in a similar way? Or maybe even copy?
Disability Rhetoric is the first book to view rhetorical theory and history through the lens of disability studies. Traditionally, the body has been seen as, at best, a rhetorical distraction; at worst, those whose bodies do not conform to a narrow range of norms are disqualified from speaking. Yet, Dolmage argues that communication has always been obsessed with the meaning of the body and that bodily difference is always highly rhetorical. Following from this rewriting of rhetorical history, he outlines the development of a new theory, affirming the ideas that all communication is embodied, that the body plays a central role in all expression, and that greater attention to a range of bodies is therefore essential to a better understanding of rhetorical histories, theories, and possibilities.
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bedetermined
In some ways this feels a little too close to the saying "there is no normal." Conversely, because of my interests in disabilities studies, this gets a little too close to the belief that "we are all disabled." How closely does this proposal align with those (verging on banal) mottos?
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- Jan 2017
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static1.squarespace.com static1.squarespace.com
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defects
For Hume, taste and judgement rely on the senses, and the practice to perfect the senses, to develop a "delicacy of taste." I think it's hard not to agree with this, but how does disability fit in with this? Illness comes up A LOT in this piece, even in calling art that has some sort of problem deformed or defective. But how can understandings of delicate taste and judgement incorporate people with varying degrees of sight, hearing, taste, smell--people who surely have a "delicacy of imagination" but encounter art differently?
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thefunambulist.net thefunambulist.net
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Underpinning these discussions was the belief that the materiality of the body, one’s physical features were a catalogue of signs to be interpreted not only for the sake one’s own body, as was the case for bedside medicine, but rather and mainly for the body politic.
So many sources to share here, but here is one in particular that I think is especially relevant today, particularly as we think about enforcement of norms based on appearance and how it...defines (?)...national identity: "Disabled Upon Arrival: The Rhetorical Construction of Disability and Race at Ellis Island" by Jay Dolmage. Hopefully this link takes you to the PDF.
Important quote: "Ellis Island was designed to process the immigrant body—through an industrialized choreography, through a regime of vision, and through layers of anti-immigration discourse. Ellis Island became the key laboratory and operating theater for American eugenics, the scientific racism that can be seen to define a unique era of Western history, the effects of which can still be felt today. I will argue that Ellis Island, as a rhetorical space, can be seen as a nexus—and a special point of origin—for eugenics and the rhetorical construction of disability and race in the early twentieth century" (27).
Also, here's a video of this paper presented as a lecture.
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- Nov 2016
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www.literacyworldwide.org www.literacyworldwide.org
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reminding students to use alternative text for images to support those with visual disabilities.
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- Jun 2015
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caseyboyle.net caseyboyle.net
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we will all be- come disabled if we live long enough
Yes.
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