55 Matching Annotations
  1. Dec 2022
    1. I came here after recalling a critique by Bessel van der Kolk's "The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma" regarding the disease model and it's negative impact on adequately helping people with trauma. van der Kolk's critique was similar to Marc Lewis' critique of the disease model as it applies to addiction from "The Biology of Desire: Why Addiction Is Not a Disease". This made me wonder what the term "disease" actually means and whether or not some general consensus existed within the medical community. This article suggests there is no such consensus.

      This article is by Jackie Leach Scully who holds a "PhD in cellular pathology, University of Cambridge; BA (Hons) in biochemistry, University of Oxford; MA in psychoanalytic studies, Sheffield University".

      Scully does several insightful things in this paper the following are the ones that were most salient to me upon the first read: - distinguishes "disease" from "disability" - contrasts the "social model" and "medical model" perspectives on "disability" - The "medical model" referred to here is probably what Lewis & van der Kolk are critiquing as the "disease model".<br /> - Are the "medical" and "disease" model different? - the social model seems to have arisen as a response to the inadequacy of the medical model

          - "The social model's fundamental criticism of the medical model is that it wrongly locates 'the problem' of disability in biological constraints, considering it only from the point of view of the individual and neglecting the social and systemic frameworks that contribute to it. The social model distinguishes between impairment (the biological substrate, such as impaired hearing) and the disabled experience. In this view the presence of impaired hearing is one thing, while the absence of subtitling on TV is quite another, and it is the refusal of society to make the necessary accommodations that is the real site of disability. A social model does not ignore biology, but contends that societal, economic and environmental factors are at least as important in producing disability."
      
      • brings up a subtle point that there are two jumps "from gene to phenotype, and from phenotype to experience" and that some of the arguments mentioned "suggest that the 'harm' of the impairment is not straightforwardly related to phenotype. What ought to concern us about disease and disability is the disadvantage, pain or suffering involved, and in a sense the impairment is always a kind of surrogate marker for this experience."
  2. Aug 2022
  3. Apr 2022
    1. What was new was a realization for me that I didn’t have a very good language to defend the value of my life, the worthiness of my life

      writing about disability Chloe

      • [I] i don't have rich vocabulary to express my ability of my physical (leg) and mental (ADHD) disability in the form of arguments and writing
  4. Mar 2022
  5. Feb 2022
  6. Jan 2022
  7. Nov 2021
  8. Sep 2021
    1. Just as normalizing the use of pronouns has been an important step for supporting gender justice, we argue that normalizing access talk is an important step for advancing disability justice in STEM fields. Moreover, we argue that all individuals have access needs, regardless of whether they are disabled or nondisabled.

      normalizing use of sharing and checking access needs.

    1. “I want to show that people need not be limited by physical handicaps as long as they are not disabled in spirit.”
    2. “I accept that there are some things I can't do. But they are mostly things I don’t particularly want to do anyway. I seem to manage to do anything that I really want.”
  9. Jul 2021
  10. Jun 2021
    1. Thank God for Cook County Hospital [Chuckles]. They don't charge you a thing, but she got the medical treatment that she needed. She had brain surgery. They removed the tumor and she had to be in therapy for a few years in order to gain … she couldn't talk. She didn't have movement in half of her face, so she couldn't speak because her tongue was numb on one side, so she had to have physical therapy. I went with her a couple times because I had to translate. Sometimes they didn't have people who would translate for my mother. At this point, I had already learned English, but she had to practice every single day. Still to this day, there are a few words that she cannot say.

      Time in the US, Illness

  11. May 2021
    1. Andre, F., Booy, R., Bock, H., Clemens, J., Datta, S., John, T., Lee, B., Lolekha, S., Peltola, H., Ruff, T., Santosham, M., & Schmitt, H. (2008). Vaccination greatly reduces disease, disability, death and inequity worldwide. Bulletin of the World Health Organization, 86(2), 140–146. https://doi.org/10.2471/BLT.07.040089

  12. Apr 2021
  13. Mar 2021
  14. Sep 2020
    1. In addition to the reading I have done, I would like add that technology can transform the lives of people with disabilities and/or learning challenges.My friend who is blind LOVES technology and uses it to do all kinds of things.

  15. Jun 2020
  16. May 2020
  17. Apr 2020
  18. Oct 2019
    1. BrainHQ, is an online brain-training software also developed by Posit Science. It is the only software available in Greek being used to any portable computing device (tablet, smartphone, etc.) as an application either on Android or on IOS provided in different languages. Undoubtedly, improvement of brain performance can bring multiple benefits to everyday life. Both research studies and the testimonials of users themselves show that BrainHQ offers benefits in improving thinking, memory and hearing, attention and vision, improving reaction speed, safer driving, self-confidence, quality discussion and good mood. BrainHQ includes 29 exercises divided into 6 categories: Attention, Speed, Memory, Skills, Intelligence and Navigation.

      In this conference paper the author is discussing about the different methods to interactively help learn people with disability, how their concentration and enthusiasm/motivation increases, if the right tool is used to teach them

    1. espite the potential of emerging technologies to assist persons with cognitive disabilities,significant practical impediments remain to be overcome in commercialization, consumerabandonment, and in the design and development of useful products. Barriers also exist in terms of the financial and organizational feasibility of specific envisionedproducts, and their limited potential to reach the consumer market. Innovative engineeringapproaches, effective needs analysis, user-centered design, and rapid evolutionary developmentare essential to ensure that technically feasible products meet the real needs of persons withcognitive disabilities. Efforts must be made by advocates, designers and manufacturers to promote betterintegration of future software and hardware systems so that forthcoming iterations of personalsupport technologies and assisted care systems technologies do not quickly become obsolete.They will need to operate seamlessly across multiple real-world environments in the home,school, community, and workplace

      This journal clearly explains the use of technologies with special aid people how a certain group can leverage it, while also touch basing on what are the challenges which special aid people face financially.

  19. Sep 2019
    1. Recommendation to lift staffing cap

      The NDIA to lift the staffing cap to employ more NDIA planners and ensure NDIA planners are always used for participants with complex disabilities and/or lives. Where a LAC is the NDIA representative in a planning meeting, these LACs need to ensure they are trained and encouraged to work towards understanding individual needs and goals as opposed > to pre-empting needs based on disability type and therefore misrepresenting the actual needs of the participant.

  20. Mar 2019
    1. Adult students have a higher incidence of disability and are less likely to seek accommodations than the general student population, so it is critical that institutions of higher education anticipate their needs, especially in online classes.

      This article provides statistics about the number of adult learners who learn online with a disability and how these numbers need to be addressed. The author observes that adult learning are least likely to ask for help and it's the designers job to assess their work to make it more accessible. This article provides recommendations on how to become more familiar with technology and what guidelines people should be following. Rating: 10/10 for addressing accessibility among adult learners and providing recommendations.

    1. The project reported here aimed to highlight the advantages and weaknesses of web‐based learning for adults with learning disability, and to suggest improvements.

      This article reviews challenges faced by adult learners with learning disabilities as it related to online learning. This article discusses how adults with learning disabilities might not adopt new technologies in a productive way and highlights positive and negative aspects of this scenario. Additionally the author provides solutions to identify advantages and disadvantages of online learning for adults. Rating: 9/10 for addressing accessibility and disability concerns among adult learners.

  21. Feb 2019
    1. as the names of colours to a blind man, or sounds to a deaf man, need not here be mentioned.

      Ah, a disability connection to be made here. So, words don't necessarily serve all humans, but are considered natural? An interesting turn to take, Locke.

  22. Jun 2018
    1. I had a learning disability when I was in school. But I could do factory work. Factory work is what we did. Now robots do that job. What happens to people like me?
  23. Dec 2017
  24. Apr 2017
    1. This is why people can play the piano with their fingers but not with their toes.

      That does not really explain why there are very talented musicians that have limb defects, but I suppose that similar to a blind person being able to hear better, their brains adjust (like complex-adaptive systems do) and reassign a new input-element (e.g. the feet) to a left-over motoric system(e.g. the hands).

  25. Mar 2017
    1. nature

      Words having naturally no signification, the idea which each stands for must be learned and retained, by those who would exchange thoughts, and hold intelligible discourse with others, in any language. But this is the hardest to be done where,

      First, The ideas they stand for are very complex, and made up of a great number of ideas put together.

      Secondly, Where the ideas they stand for have no certain connection in nature; and so no settled standard anywhere in nature existing, to rectify and adjust them by.

      Thirdly, When the signification of the word is referred to a standard, which standard is not easy to be know.

      Fourthly, Where the signification of the world and the real essence of the thing are not exactly the same.

      These are difficulties that attend the signification of several words that are intelligible. Those which are not intelligible at all, such as names standing for any simple ideas which another has not organs of faculties to attain; as the names of colours to a blind man, or sounds to a deaf man, need not here be mentioned.

      In all these cases we shall find an imperfection in words; which I shall more at large explain, in their particular application to our several sorts of ideas: for if we examine them, we shall find that the names of mixed modes are most liable to doubtfulness and imperfection, for the two first of these reasons; and the names of substances chiefly for the two latter. (818)

    2. naturally

      See Jay Dolmage's book Disability Rhetoric

      Is this Elaboration an attempt to think in a similar way? Or maybe even copy?

      Disability Rhetoric is the first book to view rhetorical theory and history through the lens of disability studies. Traditionally, the body has been seen as, at best, a rhetorical distraction; at worst, those whose bodies do not conform to a narrow range of norms are disqualified from speaking. Yet, Dolmage argues that communication has always been obsessed with the meaning of the body and that bodily difference is always highly rhetorical. Following from this rewriting of rhetorical history, he outlines the development of a new theory, affirming the ideas that all communication is embodied, that the body plays a central role in all expression, and that greater attention to a range of bodies is therefore essential to a better understanding of rhetorical histories, theories, and possibilities.

    3. bedetermined

      In some ways this feels a little too close to the saying "there is no normal." Conversely, because of my interests in disabilities studies, this gets a little too close to the belief that "we are all disabled." How closely does this proposal align with those (verging on banal) mottos?

  26. Jan 2017
    1. defects

      For Hume, taste and judgement rely on the senses, and the practice to perfect the senses, to develop a "delicacy of taste." I think it's hard not to agree with this, but how does disability fit in with this? Illness comes up A LOT in this piece, even in calling art that has some sort of problem deformed or defective. But how can understandings of delicate taste and judgement incorporate people with varying degrees of sight, hearing, taste, smell--people who surely have a "delicacy of imagination" but encounter art differently?

    1. Underpinning these discussions was the belief that the materiality of the body, one’s physical features were a catalogue of signs to be interpreted not only for the sake one’s own body, as was the case for bedside medicine, but rather and mainly for the body politic.

      So many sources to share here, but here is one in particular that I think is especially relevant today, particularly as we think about enforcement of norms based on appearance and how it...defines (?)...national identity: "Disabled Upon Arrival: The Rhetorical Construction of Disability and Race at Ellis Island" by Jay Dolmage. Hopefully this link takes you to the PDF.

      Important quote: "Ellis Island was designed to process the immigrant body—through an industrialized choreography, through a regime of vision, and through layers of anti-immigration discourse. Ellis Island became the key laboratory and operating theater for American eugenics, the scientific racism that can be seen to define a unique era of Western history, the effects of which can still be felt today. I will argue that Ellis Island, as a rhetorical space, can be seen as a nexus—and a special point of origin—for eugenics and the rhetorical construction of disability and race in the early twentieth century" (27).

      Also, here's a video of this paper presented as a lecture.

  27. Nov 2016
  28. Jun 2015