- Jun 2024
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Mais sous un vocabulaire commun de fatigue, de douleur, sous le même mot, se cachent des ressentis, des impacts, des gestions différentes. Donc à mon avis, on est expert dans le domaine qu'on connait bien, c'est à dire sa propre pathologie.
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docdrop.org docdrop.org
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Résumé de la vidéo [00:00:08][^1^][1] - [00:05:12][^2^][2]:
Ce webinaire explore l'importance de l'expérience patient comme démarche stratégique pour les établissements de santé. Il aborde les différentes interprétations de l'expérience patient dans le secteur sanitaire, médico-social et par les associations de patients, soulignant l'engagement des patients à tous les niveaux du système de santé.
Points forts: + [00:00:30][^3^][3] Introduction à l'expérience patient * Importance de l'engagement des patients * Évolution des politiques publiques de santé * Rôle des nouvelles réglementations + [00:01:26][^4^][4] Différentes perspectives de l'expérience patient * Variations selon les secteurs * Amélioration de la sécurité et de la qualité des soins * Collaboration des patients dans l'évaluation des pratiques + [00:02:38][^5^][5] Approches complémentaires de l'expérience patient * Importance du savoir d'expérience * Interaction avec le système de soins * Impact de l'histoire de vie des patients + [00:04:00][^6^][6] Le récit patient comme outil précieux * Construction de l'expérience en devenir * Traduction du vécu individuel et collectif * Révélation des obstacles et des aides dans le parcours de soins
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docdrop.org docdrop.org
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Résumé de la vidéo [00:00:01][^1^][1] - [00:24:49][^2^][2]:
Cette vidéo présente un webinaire sur l'importance de l'expérience patient dans les établissements de santé et comment elle peut être une démarche stratégique pour améliorer la qualité des soins. Les intervenants discutent des méthodes d'évaluation de l'expérience patient, de l'importance de la mesure du point de vue du patient et de l'évaluation de la qualité de vie liée aux soins.
Points forts: + [00:00:01][^3^][3] Introduction au webinaire * Présentation de l'objectif du webinaire * Importance de l'expérience patient dans la certification des établissements de santé * Rappel du premier webinaire et de son succès + [00:04:01][^4^][4] Méthodologie de l'expérience patient * Discussion sur la mesure de l'expérience patient * Importance de l'évaluation de la qualité de vie et de la satisfaction des patients * Propositions pour le développement d'indicateurs de qualité et de pertinence des soins + [00:14:01][^5^][5] Analyse des commentaires des patients * Présentation des résultats nationaux des établissements privés * Importance des verbatims pour comprendre l'expérience patient * Projet d'outil d'analyse des verbatims utilisant l'intelligence artificielle + [00:17:00][^6^][6] Questionnaires d'expérience patient * Développement de questionnaires pour différentes situations de soins * Expérimentation et validation des questionnaires * Importance de la participation des établissements de santé et des patients Résumé de la vidéo [00:24:52][^1^][1] - [00:49:52][^2^][2]:
La vidéo présente un webinaire sur l'expérience patient comme démarche stratégique pour les établissements de santé. Elle aborde le programme de la Haute Autorité de Santé (HAS) pour promouvoir l'utilisation des PROMs (Patient-Reported Outcome Measures) dans les établissements de santé, les défis de leur mise en œuvre et l'importance des registres standardisés pour améliorer la qualité des soins.
Points forts: + [00:24:52][^3^][3] Programme de la HAS * Promotion des PROMs en santé * Publication de guides et panorama d'expériences étrangères * Appels à projets pour établir des indicateurs de résultats + [00:29:19][^4^][4] Rôle des PROMs * Amélioration des pratiques de santé * Optimisation des parcours de soins * Valorisation des innovations + [00:30:23][^5^][5] Importance des résultats rapportés par les patients * Impact sur la qualité de vie quotidienne * Nécessité de registres standardisés pour évaluer la qualité des soins + [00:39:50][^6^][6] Cas pratiques et gouvernance * Exemples d'implémentation des PROMs en ophtalmologie et orthopédie * Importance d'une gouvernance indépendante et collégiale pour les registres Résumé de la vidéo [00:49:56][^1^][1] - [01:15:10][^2^][2]:
Cette vidéo présente un webinaire sur l'expérience patient comme démarche stratégique pour les établissements de santé. Elle aborde l'utilisation du digital pour améliorer le suivi et la comparaison des soins, l'importance de l'interopérabilité, et l'impact positif sur les pratiques des praticiens et la santé des patients.
Points forts: + [00:49:56][^3^][3] Utilisation du digital et interopérabilité * Le digital réduit les erreurs et biais * Interopérabilité essentielle pour l'extraction et la définition des données * Comparaison avec d'autres pays grâce à la standardisation + [00:52:39][^4^][4] Amélioration des pratiques et de la santé des patients * Augmentation significative de la moyenne des gains de santé des praticiens * Changement des comportements et relations avec les patients * Identification des praticiens en difficulté pour leur apporter de l'aide + [00:55:01][^5^][5] Mesure de l'empathie et de la qualité de la relation patient-chirurgien * Corrélation forte entre la qualité de la relation et le retour à l'emploi * Utilisation de scores pour mesurer l'empathie et la fonctionnalité * Comparaison des scores fonctionnels et relationnels au sein de la communauté de pratique + [01:02:07][^6^][6] Vision de l'expérience patient par France à santé * L'expérience patient ne se limite pas à des questionnaires fermés * Importance de travailler sur les émotions ressenties et les résultats cliniques * Collaboration avec les patients pour partager les résultats et améliorer les soins Résumé de la vidéo [01:15:12][^1^][1] - [01:40:01][^2^][2]:
Cette partie de la vidéo discute de l'importance de l'expérience patient dans les établissements de santé et comment les représentants des usagers peuvent s'engager dans ce processus. L'orateur souligne que l'expérience patient est plus qu'une mesure de satisfaction; c'est un changement de paradigme qui ouvre de nouvelles possibilités pour améliorer la qualité et la sécurité des soins.
Points forts: + [01:15:12][^3^][3] L'expérience patient comme vecteur de travail * Importance de travailler avec les représentants des usagers * Utilisation des plaintes et éloges pour améliorer la qualité des soins + [01:17:00][^4^][4] Engagement des représentants des usagers * Promotion et participation au recueil de l'expérience patient * Contribution aux plans d'action et aux actions correctives + [01:19:00][^5^][5] Nouvelles formes d'engagement des patients * Exemples de patients partenaires et médiateurs de santé * Typologie des rôles des patients dans l'amélioration des soins + [01:22:00][^6^][6] Vers un nouvel écosystème de l'expérience patient * Développement d'écosystèmes complets incluant divers acteurs * Rôle de la Commission des usagers et des associations conventionnées Résumé de la vidéo [01:40:03][^1^][1] - [02:00:13][^2^][2]:
Cette partie de la vidéo présente un webinaire sur l'expérience patient dans les établissements de santé. Il met en lumière l'importance de l'expérience patient comme démarche stratégique et partage des exemples concrets d'actions engagées pour améliorer cette expérience dans différents établissements.
Points forts: + [01:40:03][^3^][3] Mise en place d'une méthode * Utilisation d'une nouvelle méthode pour observer l'expérience patient * Choix d'un secteur de cardiologie pour une étude approfondie * Suivi de trois patients sur une journée + [01:42:02][^4^][4] Engagement de la Clinique Pasteur * Présentation des actions de la Clinique Pasteur à Toulouse * Mise en œuvre d'une stratégie centrée sur l'expérience patient * Création d'une direction dédiée à l'expérience patient + [01:44:01][^5^][5] Diagnostic et plan d'action * Réalisation d'un diagnostic pour identifier les besoins et les attentes * Développement d'un plan d'action basé sur le parcours patient * Inclusion des usagers dans la démarche pour une meilleure représentativité + [01:47:46][^6^][6] Amélioration de l'accueil et du parcours patient * Refonte de l'accueil pour une expérience patient plus agréable * Utilisation du numérique pour préparer l'hospitalisation * Création d'un salon de sortie pour sécuriser le départ des patients + [01:59:01][^7^][7] Suivi post-hospitalisation et mesure de l'expérience * Suivi du patient après son retour à domicile via un portail numérique * Mise en place de questionnaires pour mesurer l'expérience patient * Coordination du parcours patient pour une expérience améliorée Résumé de la vidéo [02:00:15][^1^][1] - [02:05:01][^2^][2]:
Cette partie du webinaire se concentre sur l'importance de l'expérience patient dans les établissements de santé et comment elle peut soutenir le personnel soignant. L'organisation mise en place vise à alléger la charge administrative des soignants, leur permettant de se concentrer sur leur cœur de métier. La clinique Pasteur partage son expérience en mettant en œuvre cette stratégie centrée sur le patient.
Points forts: + [02:00:15][^3^][3] Soutien au personnel soignant * Préparation des dossiers patients * Numérisation et organisation des informations avant l'arrivée du patient * Équipes dédiées pour la gestion administrative + [02:01:29][^4^][4] Partage d'expériences et valeurs * Échanges encouragés pour améliorer l'expérience patient * La démarche unit le personnel autour du service au patient * Importance de la qualité des soins et des conditions de travail + [02:02:18][^5^][5] Stratégie globale de l'expérience patient * Amélioration de la qualité des prises en charge * Performance des établissements de santé * Promotion de la démocratie en santé et prise en compte de l'expérience patient + [02:04:03][^6^][6] Perspectives et événements futurs * Développement progressif de l'expérience patient dans les établissements * Rencontres de la FHP et Congrès des représentants des usagers à venir * Engagement continu pour l'amélioration de l'expérience patient
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Résumé de la vidéo [00:00:08][^1^][1] - [00:05:12][^2^][2]:
Ce webinaire intitulé « L’expérience patient : une démarche stratégique pour les établissements de santé » explore l'importance de l'expérience patient dans le système de santé. Il discute des différentes interprétations de l'expérience patient et de son utilisation pour améliorer la qualité des soins.
Points forts: + [00:00:30][^3^][3] Introduction à l'expérience patient * Importance de l'engagement des patients * Évolution des politiques publiques de santé * Rôle des patients dans l'évaluation des soins + [00:01:26][^4^][4] Différentes perspectives de l'expérience patient * Variations selon les secteurs sanitaires et médico-sociaux * Amélioration de la sécurité et de la qualité des soins * Compétences acquises par les patients + [00:03:03][^5^][5] Définition de l'Institut français de l'expérience patient * Interactions et situations vécues par les patients * Influence de l'organisation des soins et de l'histoire personnelle * Savoir d'expérience comme un processus continu + [00:04:00][^6^][6] L'expérience comme construction en devenir * Récits des patients comme moyen de traduire l'expérience * Impact des interactions avec le système de soins * Importance de l'adaptation individuelle et collective
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- Sep 2023
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superuser.com superuser.com
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One thing for the impatient: after the program displays number of messages in both accounts, it seems that it has hung up. But it does something in the background and one has to wait a longer while before it starts displaying info about copied messages.
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- Aug 2022
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gidmk.medium.com gidmk.medium.com
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Nerd, G. M.-K. H. (2022, February 25). The Jury is Still Out on Ivermectin. Medium. https://gidmk.medium.com/the-jury-is-still-out-on-ivermectin-7d0a1895549
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happiful.com happiful.com
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In Michael Ondaatje’s novel, The English Patient, the word “thinkering” was coined, linking the way we create and understand concepts in our mind with “tinkering”.
https://happiful.com/what-is-thinkering/
thinkering<br /> a portmanteau of thinking and tinkering<br /> It describes the sort of mindful thinking and exploration one does when interacting with objects using one's hands.
quoted here as first appearing in Michael Ondaatje's novel The English Patient
link to: Barbara Oakley and ideas of diffuse thinking
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- Apr 2022
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www.idsociety.org www.idsociety.org
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CDC/IDSA COVID-19 Clinician Call: Vaccine Boosters. (n.d.). Retrieved 27 April 2022, from https://www.idsociety.org/multimedia/clinician-calls/cdcidsa-covid-19-clinician-call-vaccine-boosters/
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www.imperial.ac.uk www.imperial.ac.uk
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Imperial News. ‘“Issue of Inequalities” for Long COVID Patients Needs to Be Addressed | Imperial News | Imperial College London’. Accessed 22 April 2022. https://www.imperial.ac.uk/news/232234/issue-inequalities-long-covid-patients-needs/.
Tags
- is:website
- disability
- health and wellbeing
- survey
- fatigue
- school of public health
- patient
- wider society
- comms strategy
- data
- health
- urgence
- COVID-19
- long covid
- infectious diseases
- imperial college london
- science
- academic
- centre
- inequalities
- symptom
- lang:en
- persistent symptoms
- global challenges
Annotators
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twitter.com twitter.com
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BNO/Medriva Newsroom [@medriva]. (2021, November 26). South Africa’s health minister says, based on a small sample of Omicron cases, the majority of hospital patients are unvaccinated: ‘It indicates that the vaccines are providing protection’ [Tweet]. Twitter. https://twitter.com/medriva/status/1464327805836083201
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- Mar 2022
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twitter.com twitter.com
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Kyle Sheldrick. (2022, February 21). This is probably the worst covid research I have read, and I helped expose a fraudulent study that was just the same patient copied-and pasted over and over again, and another which enrolled dead people. This is far more damaging to public health. 1/12 [Tweet]. @K_Sheldrick. https://twitter.com/K_Sheldrick/status/1495687486341017601
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twitter.com twitter.comTwitter1
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ReconfigBehSci. (2022, January 6). RT @GidMK: Perhaps unsurprisingly, this is an absolutely awful study filled with issues and numeric mistakes https://t.co/hvEv5gMMn2 [Tweet]. @SciBeh. https://twitter.com/SciBeh/status/1478987492552589314
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- Jan 2022
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twitter.com twitter.com
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Stefan Schubert. (2022, January 16). Pretty big difference US vs UK in this wave. Vaccination differences likely a big part of it. Https://t.co/qnHvRRb0rE [Tweet]. @StefanFSchubert. https://twitter.com/StefanFSchubert/status/1482728763779686405
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khn.org khn.org
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Jewett, C. (2021, November 4). Patients Went Into the Hospital for Care. After Testing Positive There for Covid, Some Never Came Out. Kaiser Health News. https://khn.org/news/article/hospital-acquired-covid-nosocomial-cases-data-analysis/
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- Dec 2021
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twitter.com twitter.com
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Prof Kamlesh Khunti. (2021, November 26). If you have any doubts about the benefits of #COVIDVaccination, than please look at the graph below on patients admitted to intensive care unit with #COVID19 #VaccinesSaveLives https://icnarc.org/our-audit/audits/cmp/reports @fascinatorfun https://t.co/dorA9tpJym [Tweet]. @kamleshkhunti. https://twitter.com/kamleshkhunti/status/1464280069707374595
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- Nov 2021
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www.abc.net.au www.abc.net.au
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‘A Small Number of Fully Vaccinated People with COVID-19 in NSW Have Died — Here’s Why’. ABC News, 28 September 2021. https://www.abc.net.au/news/2021-09-29/why-a-small-number-of-fully-vaccinated-people-have-died-of-covid/100497770.
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- Oct 2021
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www.bmj.com www.bmj.com
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Mahase, E. (2021). Covid-19: Just a third of blood cancer patients had antibodies against delta variant after two vaccine doses, study finds. BMJ, 375, n2623. https://doi.org/10.1136/bmj.n2623
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twitter.com twitter.com
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Kenneth Baillie. (2021, October 27). When a healthcare system fails, increasing numbers of people suffer and die needlessly. That’s all. If you aren’t a patient or staff, you don’t see it. But this is happening, now, all over the UK. 2/n [Tweet]. @kennethbaillie. https://twitter.com/kennethbaillie/status/1453422360795680769
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www.theguardian.com www.theguardian.com
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Gregory, A., Stewart, H., & Sample, I. (2021, October 19). Implement ‘plan B’ winter measures now or risk NHS crisis, Johnson warned. The Guardian. https://www.theguardian.com/world/2021/oct/19/implement-plan-b-winter-measures-now-or-risk-nhs-crisis-johnson-warned
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papers.ssrn.com papers.ssrn.com
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Tran, V.-T., Perrodeau, E., Saldanha, J., Pane, I., & Ravaud, P. (2021). Efficacy of COVID-19 Vaccination on the Symptoms of Patients With Long COVID: A Target Trial Emulation Using Data From the ComPaRe e-Cohort in France (SSRN Scholarly Paper ID 3932953). Social Science Research Network. https://papers.ssrn.com/abstract=3932953
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twitter.com twitter.com
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Prof. Akiko Iwasaki on Twitter. (n.d.). Twitter. Retrieved 4 October 2021, from https://twitter.com/VirusesImmunity/status/1444306456266825732
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uclpartners.com uclpartners.com
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Involving patients from the very beginning for COVID rehabilitation. (n.d.). UCLPartners. Retrieved September 2, 2021, from https://uclpartners.com/blog-post/involving-patients-from-the-very-beginning-for-covid-rehabilitation/
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docs.google.com docs.google.com
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Understanding COVID-19 Registration Form. (n.d.). Google Docs. Retrieved March 31, 2021, from https://docs.google.com/forms/d/e/1FAIpQLScrC4krKVHcSm_Wi2VcXcGHa4F8l3cilL2xhbB62etcK4sy4w/viewform?usp=embed_facebook
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- Sep 2021
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twitter.com twitter.com
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ReconfigBehSci on Twitter: ‘RT @MDaware: The problem is the leaders, the media figures, the physicians who know better but would rather get in on the grift https://t.c…’ / Twitter. (n.d.). Retrieved 3 September 2021, from https://twitter.com/SciBeh/status/1432711694569050119
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- Aug 2021
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www.bmj.com www.bmj.com
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Shemtob, L., Ferris, M., Asanati, K., & Majeed, A. (2021). Vaccinating healthcare workers against covid-19. BMJ, 374, n1975. https://doi.org/10.1136/bmj.n1975
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www.al.com www.al.com
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‘I’m sorry, but it’s too late’: Alabama doctor tells unvaccinated, dying COVID patients. (2021, July 21). Al. https://www.al.com/news/2021/07/im-sorry-but-its-too-late-alabama-doctor-on-treating-unvaccinated-dying-covid-patients.html
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- Jul 2021
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twitter.com twitter.com
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Dvir Aran. (2021, July 27). You’ve probably seen reports from Israel on low vaccine effectiveness in this wave. Is it because of Delta? Waning immunity? We think the reason is mostly that we got the denominator wrong. Https://t.co/yloh5Vo9Xi [Tweet]. @dvir_a. https://twitter.com/dvir_a/status/1420059124700700677
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twitter.com twitter.com
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BNO Newsroom. (2021, July 14). COVID-19 hospitalizations in Missouri have reached a 5-month high https://t.co/342RW903WS [Tweet]. @BNODesk. https://twitter.com/BNODesk/status/1415105797575610368
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- Jun 2021
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twitter.com twitter.com
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ReconfigBehSci. (2021, June 7). RT @JamesWard73: Thanks to the person who pointed me towards this report: Https://t.co/XZZ7JsdA8t (you know who you are!)—Lots of interes… [Tweet]. @SciBeh. https://twitter.com/SciBeh/status/1402050855449202696
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www.theguardian.com www.theguardian.com
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agencies, Guardian staff and. “Children Are ‘Vulnerable Host’ for Covid as Cases Recede, US Expert Warns.” the Guardian, June 7, 2021. http://www.theguardian.com/world/2021/jun/07/children-covid-vulnerable-host-cases-recede-us.
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www.theguardian.com www.theguardian.com
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the Guardian. “‘They Stormed the ICU and Beat the Doctor’: Health Workers under Attack,” June 7, 2021. http://www.theguardian.com/global-development/2021/jun/07/they-stormed-the-icu-and-beat-the-doctor-health-workers-under-attack.
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Salisbury, H. (2021). Helen Salisbury: Should patients worry about their data? BMJ, 373, n1325. https://doi.org/10.1136/bmj.n1325
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- May 2021
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Germany rejects US push to waive COVID vaccine patents | News | DW | 06.05.2021. (n.d.). Retrieved May 11, 2021, from https://www.dw.com/en/germany-rejects-us-push-to-waive-covid-vaccine-patents/a-57453453?maca=en-Twitter-sharing
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www.theguardian.com www.theguardian.com
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Covid vaccines: What is patent waiving and will it solve the global shortage? | Coronavirus | The Guardian. (n.d.). Retrieved May 7, 2021, from https://www.theguardian.com/world/2021/may/06/covid-vaccines-what-is-patent-waiving-and-will-it-solve-the-global-shortage
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twitter.com twitter.com
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Ashish K. Jha, MD, MPH. (2020, December 1). There is something funny happening with COVID hospitalizations Proportion of COVID pts getting hospitalized falling A lot Just recently My theory? As hospitals fill up, bar for admission rising A patient who might have been admitted 4 weeks ago may get sent home now Thread [Tweet]. @ashishkjha. https://twitter.com/ashishkjha/status/1333636841271078912
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blogs.bmj.com blogs.bmj.com
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Nisreen Alwan: We must pay more attention to covid-19 morbidity in the second year of the pandemic. (2021, February 3). The BMJ. https://blogs.bmj.com/bmj/2021/02/03/nisreen-alwan-we-must-pay-more-attention-to-covid-19-morbidity-in-the-second-year-of-the-pandemic/
Tags
- prevention
- long COVID
- Office of National Statistics
- patient register
- asymptomatic
- is:blog
- NHS
- symptom
- morbidity
- lang:en
- COVID-19
Annotators
URL
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journals.plos.org journals.plos.org
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Piotrowska, M. J., Sakowski, K., Karch, A., Tahir, H., Horn, J., Kretzschmar, M. E., & Mikolajczyk, R. T. (2020). Modelling pathogen spread in a healthcare network: Indirect patient movements. PLOS Computational Biology, 16(11), e1008442. https://doi.org/10.1371/journal.pcbi.1008442
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- Apr 2021
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www.cambridge.org www.cambridge.org
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Komporozos-Athanasiou, Aris, Jonathan Paylor, and Christopher Mckevitt. ‘Governing Researchers through Public Involvement’. Journal of Social Policy, undefined/ed, 1–16. https://doi.org/10.1017/S004727942100012X.
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www.theguardian.com www.theguardian.com
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the Guardian. ‘How UK Doctor Linked Rare Blood-Clotting to AstraZeneca Covid Jab’, 13 April 2021. http://www.theguardian.com/society/2021/apr/13/how-uk-doctor-marie-scully-blood-clotting-link-astrazeneca-covid-jab-university-college-london-hospital.
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twitter.com twitter.comTwitter1
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Nissim Mannathukkaren നിസ്സിം മണ്ണത്തൂക്കാരൻ. (2021, April 8). ‘The hand of God’—Nurses trying to comfort isolated patients in a Brazilian Covid isolation ward. Two disposable gloves tied, full of hot water, simulating impossible human contact. Salute to the front liners and a stark reminder of the grim situation our world is in!@sadiquiz https://t.co/eldzkT4JHa [Tweet]. @nmannathukkaren. https://twitter.com/nmannathukkaren/status/1380129214259720202
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Seasonal flu vaccine uptake in GP patients: Winter 2019 to 2020. (n.d.). GOV.UK. Retrieved April 8, 2021, from https://www.gov.uk/government/statistics/seasonal-flu-vaccine-uptake-in-gp-patients-winter-2019-to-2020
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- Mar 2021
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blogs.bmj.com blogs.bmj.com
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The BMJ. ‘Marija Pantelic and Nisreen Alwan: The Stigma Is Real for People Living with Long Covid’, 25 March 2021. https://blogs.bmj.com/bmj/2021/03/25/marija-pantelic-and-nisreen-alwan-the-stigma-is-real-for-people-living-with-long-covid/.
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www.bmj.com www.bmj.com
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Increasing the impact of health research through co-production of knowledge | The BMJ. (n.d.). Retrieved 16 February 2021, from https://www.bmj.com/co-producing-knowledge?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage
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www.medrxiv.org www.medrxiv.org
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Levine-Tiefenbrun, M., Yelin, I., Uriel, H., Kuint, J., Schreiber, L., Herzel, E., Katz, R., Ben-Tov, A., Patalon, T., Chodick, G., & Kishony, R. (2020). Association of COVID-19 RT-qPCR test false-negative rate with patient age, sex and time since diagnosis. MedRxiv, 2020.10.30.20222935. https://doi.org/10.1101/2020.10.30.20222935
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- Feb 2021
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www.newsweek.com www.newsweek.com
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I’m a doctor in Illinois, we’re scared of running out of hospital beds. (2020, November 20). Newsweek. https://www.newsweek.com/im-doctor-illinois-were-close-running-out-hospital-beds-1548681
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www.bmj.com www.bmj.com
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Oliver, D. (2020). Covid-19: Hospital discharges during pandemic were often chaotic, says watchdog. BMJ, 371, m4155. https://doi.org/10.1136/bmj.m4155
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Oliver, D. (2020). David Oliver: Getting defensive over patient experience in the pandemic. BMJ, 371, m4604. https://doi.org/10.1136/bmj.m4604
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Hauck, Katharina. “Agonising Choices in ICUs Should Be Made by Society, Not Individuals,” January 19, 2021. https://www.ft.com/content/d976a31e-90fa-4768-a680-0fcdda33cc2b.
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www.imperial.ac.uk www.imperial.ac.uk
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Imperial News. “Staff ‘need Clearer Guidance’ as COVID Overwhelms ICUs | Imperial News | Imperial College London.” Accessed February 19, 2021. https://www.imperial.ac.uk/news/212833/staff-need-clearer-guidance-covid-overwhelms/.
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www.theguardian.com www.theguardian.com
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Anonymous. (2021, January 20). This is what it’s like to be an intensive care unit nurse right now. The Guardian. http://www.theguardian.com/commentisfree/2021/jan/20/intensive-care-nurse-eu-europeans-health-britain
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www.theguardian.com www.theguardian.com
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London buses turned into ambulances to ease Covid strain. (2021, January 21). The Guardian. http://www.theguardian.com/world/2021/jan/21/london-buses-turned-into-ambulances-to-ease-covid-strain
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- Jan 2021
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Despite some implementation challenges, patient portals have allowed millions of patients to access to their medical records, read physicians’ notes, message providers, and contribute valuable information and corrections.
I wonder if patients have edit - or at least, flag - information in their record?
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- Dec 2020
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investors.modernatx.com investors.modernatx.com
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Moderna’s COVID-19 Vaccine Candidate Meets its Primary Efficacy Endpoint in the First Interim Analysis of the Phase 3 COVE Study | Moderna, Inc. (n.d.). Retrieved 1 December 2020, from https://investors.modernatx.com/news-releases/news-release-details/modernas-covid-19-vaccine-candidate-meets-its-primary-efficacy/
Tags
- phase 3
- is:webpage
- patient
- biotechnology
- study
- safety
- vaccine
- analysis
- lang:en
- Moderna
- vaccine efficacy
- COVID-19
Annotators
URL
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- Oct 2020
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www.cnn.com www.cnn.com
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CNN, N. P. W., Jo Shelley and William Bonnett. (n.d.). Doctors and nurses face abuse as UK coronavirus cases soar but social distancing wanes. CNN. Retrieved 29 October 2020, from https://www.cnn.com/2020/10/28/europe/coronavirus-blackburn-icu-second-wave/index.html
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journals.sagepub.com journals.sagepub.com
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Stevens, S. K., Brustad, R., Gilbert, L., Houge, B., Milbrandt, T., Munson, K., Packard, J., Werneburg, B., & Siddiqui, M. A. (2020). The Use of Empathic Communication During the COVID-19 Outbreak. Journal of Patient Experience, 2374373520962602. https://doi.org/10.1177/2374373520962602
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covid-19.iza.org covid-19.iza.org
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IZA – Institute of Labor Economics. ‘COVID-19 and the Labor Market’. Accessed 6 October 2020. https://covid-19.iza.org/publications/dp13715/.
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www.bmj.com www.bmj.com
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Knight, S. R., Ho, A., Pius, R., Buchan, I., Carson, G., Drake, T. M., Dunning, J., Fairfield, C. J., Gamble, C., Green, C. A., Gupta, R., Halpin, S., Hardwick, H. E., Holden, K. A., Horby, P. W., Jackson, C., Mclean, K. A., Merson, L., Nguyen-Van-Tam, J. S., … Harrison, E. M. (2020). Risk stratification of patients admitted to hospital with covid-19 using the ISARIC WHO Clinical Characterisation Protocol: Development and validation of the 4C Mortality Score. BMJ, 370. https://doi.org/10.1136/bmj.m3339
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- Sep 2020
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www.independent.co.uk www.independent.co.uk
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Hospitals told not to test staff or patients for Covid-19. (2020, September 18). The Independent. https://www.independent.co.uk/news/health/coronavirus-nhs-testing-hospitals-shortage-b485589.html
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- Aug 2020
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blogs.bmj.com blogs.bmj.com
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Covid-19 has decimated independent U.S. primary care practices—How should policymakers and payers respond? (2020, July 2). The BMJ. https://blogs.bmj.com/bmj/2020/07/02/covid-19-has-decimated-independent-u-s-primary-care-practices-how-should-policymakers-and-payers-respond/
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ps.psychiatryonline.org ps.psychiatryonline.org
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what might be learned from the case. The answer, in part, is that prudent psychiatrists and other therapists will want to be thoughtful about how they arrange follow-up care for patients whom they can no longer see.Sometimes a general suggestion that a patient seek follow-up care will be adequate. However, as the patient's condition warrants, clinicians might choose, in ascending order of time commitment, to provide the patient with the name of a particular practitioner or facility, to contact the facility to ascertain that a clinician is willing to see the patient, to help the patient make an appointment, or, with the patient's permission, to make an appointment on the patient's behalf. In some cases, it may be appropriate to ask for the patient's permission to contact his or her family to indicate a need for follow-up and to encourage the family to make sure that follow-up takes place. But of these approaches, no specific one will always be indicated, and the degree of assistance rendered the patient should be calibrated to his or her individual needs.
What can be learned from this case?
- Carefully plan follow up plans with patients (general suggestion about follow up can be enough)
- Ask patient for family information to help them get involved in the follow up process and help increase compliance.
Consider:
- Giving the specific name of a provider to follow up with
- How to contact the facility,
- See if who you provided/recommended is avaliable to take the patient
- Help patient make the appointment or make it on their behalf (with permission)
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twitter.com twitter.com
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(19) ReconfigBehSci on Twitter: ‘RT @MaartenvSmeden: The lack of rapid sharing of COVID19 patient level data https://t.co/rmEGf6xRXj’ / Twitter. (n.d.). Twitter. Retrieved 17 August 2020, from https://twitter.com/SciBeh/status/1295264691162353665
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www.nber.org www.nber.org
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Chaudhuri, S., Lo, A. W., Xiao, D., & Xu, Q. (2020). Bayesian Adaptive Clinical Trials for Anti‐Infective Therapeutics during Epidemic Outbreaks (Working Paper No. 27175; Working Paper Series). National Bureau of Economic Research. https://doi.org/10.3386/w27175
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psyarxiv.com psyarxiv.com
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Patalay, P., & Fried, E. I. (2020, July 29). Prescribing measures: Unintended negative consequences of mandating standardized mental health measurement. https://doi.org/10.31234/osf.io/kfj5z
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- Jul 2020
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www.ncbi.nlm.nih.gov www.ncbi.nlm.nih.gov
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Bae, J.-M. (2014). The clinical decision analysis using decision tree. Epidemiology and Health, 36. https://doi.org/10.4178/epih/e2014025
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www.youtube.com www.youtube.com
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Meeting the psychological needs of people recovering from severe coronavirus. (2020, May 7). https://www.youtube.com/watch?v=6hAUUTdhHlc&feature=youtu.be
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psyarxiv.com psyarxiv.com
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Tijdink, J. K., Luykx, J. J., van Veen, S., Vinkers, C., & Veltman, E. (2020). Challenging COVID-19 times for older psychiatric patients: Potential implications and solutions [Preprint]. PsyArXiv. https://doi.org/10.31234/osf.io/z4puv
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Su, Q., Hu, J., Lin, H., Zhang, Z., Zhu, E. C., Zhang, C., Wang, D., Gao, Z., & Cao, B. (2020). Prevalence and risks of severe events for cancer patients with COVID-19 infection: A systematic review and meta-analysis. MedRxiv, 2020.06.23.20136200. https://doi.org/10.1101/2020.06.23.20136200
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Shah, C., Dehmamy, N., Perra, N., Chinazzi, M., Barabási, A.-L., Vespignani, A., & Yu, R. (2020). Finding Patient Zero: Learning Contagion Source with Graph Neural Networks. ArXiv:2006.11913 [Cs]. http://arxiv.org/abs/2006.11913
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- Jun 2020
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www.thelancet.com www.thelancet.com
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Marshall, J. C., Murthy, S., Diaz, J., Adhikari, N., Angus, D. C., Arabi, Y. M., Baillie, K., Bauer, M., Berry, S., Blackwood, B., Bonten, M., Bozza, F., Brunkhorst, F., Cheng, A., Clarke, M., Dat, V. Q., de Jong, M., Denholm, J., Derde, L., … Zhang, J. (2020). A minimal common outcome measure set for COVID-19 clinical research. The Lancet Infectious Diseases, S1473309920304837. https://doi.org/10.1016/S1473-3099(20)30483-7
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www.theatlantic.com www.theatlantic.com
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Renault, M. (2020, May 5). ‘ICU Delirium’ Is Leaving COVID-19 Patients Scared and Confused. The Atlantic. https://www.theatlantic.com/science/archive/2020/05/coronavirus-icu-delirium/610546/
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onlinelibrary.wiley.com onlinelibrary.wiley.com
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Riggare, S., Stecher, B., & Stamford, J. (n.d.). Patient advocates respond to ‘Utilizing Patient Advocates…’ by Feeney et al. Health Expectations, n/a(n/a). https://doi.org/10.1111/hex.13087
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www.icuregswe.org www.icuregswe.org
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Andersson, L. (2020, June 08) COVID-19 i svensk intensivvård. Retrieved June 8, 2020, from https://www.icuregswe.org/data--resultat/covid-19-i-svensk-intensivvard/
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- May 2020
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psyarxiv.com psyarxiv.com
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Gobbi, S., Plomecka, M., Ashraf, Z., Radziński, P., Neckels, R., Lazzeri, S., Dedić, A., Bakalović, A., Hrustić, L., Skórko, B., Es haghi, S., Almazidou, K., Rodríguez-Pino, L., Alp, A. B., Jabeen, H., Waller, V., Shibli, D., AghiliBehnam, M., Strutt, A. M., … Jawaid, A. (2020). Worsening of pre-existing psychiatric conditions during the COVID-19 pandemic [Preprint]. PsyArXiv. https://doi.org/10.31234/osf.io/x6cyg
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societyforhealthpsychology.org societyforhealthpsychology.org
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SfHP COVID-19 Resources. (2020, March 23). Society for Health Psychology. https://societyforhealthpsychology.org/sfhp-news/sfhp-covid-19-resources/
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Spiegelhalter, D. (2020, May 26). Is SARS-CoV-2 viral load lower in young children than adults? Medium. https://medium.com/@d_spiegel/is-sars-cov-2-viral-load-lower-in-young-children-than-adults-8b4116d28353
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psyarxiv.com psyarxiv.com
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Schützwohl, M. (2020, May 28). Social participation, inclusion and mental well-being following SARS-CoV-2 related lockdown restrictions in adults with and without mental disorders. Results from a follow-up study in Germany. https://doi.org/10.31234/osf.io/6svxw
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www.sciencedirect.com www.sciencedirect.com
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Grifoni, A., Weiskopf, D., Ramirez, S. I., Mateus, J., Dan, J. M., Moderbacher, C. R., Rawlings, S. A., Sutherland, A., Premkumar, L., Jadi, R. S., Marrama, D., de Silva, A. M., Frazier, A., Carlin, A., Greenbaum, J. A., Peters, B., Krammer, F., Smith, D. M., Crotty, S., & Sette, A. (2020). Targets of T cell responses to SARS-CoV-2 coronavirus in humans with COVID-19 disease and unexposed individuals. Cell, S0092867420306103. https://doi.org/10.1016/j.cell.2020.05.015
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blogs.bmj.com blogs.bmj.com
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Grote, H. & Izagaren, F. (2020 May 7). Covid-19: The communication needs of D/deaf healthcare workers and patients are being forgotten. The BMJ. https://blogs.bmj.com/bmj/2020/05/07/push-universal-mask-wearing-communication-needs-deaf-forgotten/
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covidtracking.com covidtracking.com
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The COVID Tracking Project. https://covidtracking.com/
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assets.publishing.service.gov.uk assets.publishing.service.gov.uk
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Public Health England. Recommended PPE for primary, outpatient, community and social care by setting, NHS and independent sector. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/878750/T2_poster_Recommended_PPE_for_primary__outpatient__community_and_social_care_by_setting.pdf
Tags
- UK
- patient care
- community
- healthcare
- social care
- is:pdf
- chart
- NHS
- primary care
- lang:en
- outpatient
- COVID-19
- recommendation
Annotators
URL
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onlinelibrary.wiley.com onlinelibrary.wiley.com
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Casas, R. S., Cooper, J. L., & Hempel, E. V. (2020). COVID‐19 risk triage: Engaging residents in telephonic screening. Medical Education, medu.14211. https://doi.org/10.1111/medu.14211
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bjssjournals.onlinelibrary.wiley.com bjssjournals.onlinelibrary.wiley.com
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Hamza, M., Khan, H. S., Sattar, Z. A., & Hanif, M. (2020). Doctor-patient communication in surgical practice during the coronavirus (COVID-19) pandemic: WhatsApp for Doctor-Patient Communication during COVID-19 Pandemic. British Journal of Surgery. https://doi.org/10.1002/bjs.11661
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jamanetwork.com jamanetwork.com
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Nundy, S., & Patel, K. K. (2020). Hospital-at-Home to Support COVID-19 Surge—Time to Bring Down the Walls? JAMA Health Forum, 1(5), e200504–e200504. https://doi.org/10.1001/jamahealthforum.2020.0504
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jamanetwork.com jamanetwork.com
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Khullar, D., Bond, A. M., & Schpero, W. L. (2020). COVID-19 and the Financial Health of US Hospitals. JAMA. https://doi.org/10.1001/jama.2020.6269
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catalyst.nejm.org catalyst.nejm.org
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Guney S., Daniels C., & Childers Z.. (2020 April 30). Using AI to Understand the Patient Voice During the Covid-19 Pandemic. Catalyst Non-Issue Content, 1(2). https://doi.org/10.1056/CAT.20.0103
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psyarxiv.com psyarxiv.com
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Mataix-Cols, D., Ringberg, H., & de la Cruz, L. F. (2020, May 5). Perceived worsening of tics in adult patients with Tourette syndrome after the COVID-19 outbreak. https://doi.org/10.31234/osf.io/vr8km
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Lipsitch, M., Perlman, S., & Waldor, M. K. (2020). Testing COVID-19 therapies to prevent progression of mild disease. The Lancet Infectious Diseases, 0(0). https://doi.org/10.1016/S1473-3099(20)30372-8
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- Apr 2020
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psyarxiv.com psyarxiv.com
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Huang, K., Bernhard, R., Barak-Corren, N., bazerman, m., & Greene, J. D. (2020, April 22). Veil-of-Ignorance Reasoning Favors Allocating Resources to Younger Patients During the COVID-19 Crisis. https://doi.org/10.31234/osf.io/npm4v
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jamanetwork.com jamanetwork.com
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Richardson, S., Hirsch, J. S., Narasimhan, M., Crawford, J. M., McGinn, T., Davidson, K. W., Barnaby, D. P., Becker, L. B., Chelico, J. D., Cohen, S. L., Cookingham, J., Coppa, K., Diefenbach, M. A., Dominello, A. J., Duer-Hefele, J., Falzon, L., Gitlin, J., Hajizadeh, N., Harvin, T. G., … Zanos, T. P. (2020). Presenting Characteristics, Comorbidities, and Outcomes Among 5700 Patients Hospitalized With COVID-19 in the New York City Area. JAMA. https://doi.org/10.1001/jama.2020.6775
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Thornton, J. (2020). Clinicians are leading service reconfiguration to cope with covid-19. BMJ, m1444. https://doi.org/10.1136/bmj.m1444
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accessmedicine.mhmedical.com accessmedicine.mhmedical.com
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Steroids used after the first 3 to 4 days after injury do not affect wound healing as severely as when they are used in the immediate postoperative period.
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Mild to moderate normovolemic anemia does not appear to adversely affect wound oxygen tension and collagen synthesis. However, profound anemia with 15% less hematocrit can interfere with wound healing
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- Jun 2019
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www.theatlantic.com www.theatlantic.com
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But another big factor is patient preference
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- Jan 2019
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patientadvocacy.life patientadvocacy.life
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have the knowledge and skills to help navigate the hospital system, explain your diagnosis in detail, and explain potential outcomes. We are also here to help decipher the information from doctor visits, set up meetings with care teams, and organize home care, and medications
Using specialist in a field saves time, and ultimately saves lives.
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- Nov 2018
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catalyst.nejm.org catalyst.nejm.org
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As with other forms of value-based health care, patient-centered care requires a shift in the way provider practices and health systems are designed, managed, and reimbursed. In keeping with the tenets of patient-centeredness, this shift neither happens in a vacuum, it driven by traditional hierarchies in which providers or clinicians are the lone authority. Everyone, from the parking valet and environmental services staff to c-suite members, are engaged in the process, which impacts hiring, training, leadership style, and organizational culture. Patient-centered care also represents a shift in the traditional roles of patients and their families from one of passive “order taker” to one of active “team member.” One of the country’s leading proponents of patient-centered care, Dr. James Rickert, has stated that one of the basic tenets of patient-centered care is that “patients know best how well their health providers are meeting their needs.” To that end, many providers are implementing patient satisfaction surveys, patient and family advisory councils, and focus groups, and using the resulting information to continuously improve the way health care facilities and provider practices are designed, managed, and maintained from both a physical and operational perspective so they become centered more on the individual person than on a checklist of services provided. As the popularity of patient- and family-centered health care increases, it is expected that patients will become more engaged and satisfied with the delivery of their care, and evidence of its clinical efficacy should continue to mount.
Cultural shift to patient-centered care
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The concept of patient-centered care extends to the treatments and therapies clinicians provide. Not only are care plans customized, but medications are often customized as well. A patient’s individual genetics, metabolism, biomarkers, immune system, and other “signatures” can now be harnessed in many disease states — especially cancer — to create personalized medications and therapies, as well as companion diagnostics that help clinicians better predict the best drug for each patient.
Patient-centered care via personalized medicine
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Strict visiting hours and visitor restrictions are a thing of the past in a patient-centered care model. Patients are given the authority to identify who can visit and when. Family members (as defined by the patient and not limited to blood relations) are invited to visit during rounding and shift changes so they can be part of the care team, participating in discussions and care decisions. When not in the room with the patient, they are kept informed of their loved one’s progress through direct and timely updates. A patient-centered care hospital’s infrastructure encourages family collaboration through a home-like environment that not only meets the needs of the patient, but also meets the needs of family members. For example, maternity wards are being redesigned with family-friendly postpartum rooms that can accommodate the mom, new baby, and family members, who are encouraged to spend up to 24 hours a day together in the room to foster family bonding.
Patient-centered care in the hospital
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The primary goal and benefit of patient-centered care is to improve individual health outcomes, not just population health outcomes, although population outcomes may also improve. Not only do patients benefit, but providers and health care systems benefit as well, through: Improved satisfaction scores among patients and their families. Enhanced reputation of providers among health care consumers. Better morale and productivity among clinicians and ancillary staff. Improved resource allocation. Reduced expenses and increased financial margins throughout the continuum of care.
Benefits of patient-centered care
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Patient- and family-centered care encourages the active collaboration and shared decision-making between patients, families, and providers to design and manage a customized and comprehensive care plan. Most definitions of patient-centered care have several common elements that affect the way health systems and facilities are designed and managed, and the way care is delivered: The health care system’s mission, vision, values, leadership, and quality-improvement drivers are aligned to patient-centered goals. Care is collaborative, coordinated, and accessible. The right care is provided at the right time and the right place. Care focuses on physical comfort as well as emotional well-being. Patient and family preferences, values, cultural traditions, and socioeconomic conditions are respected. Patients and their families are an expected part of the care team and play a role in decisions at the patient and system level. The presence of family members in the care setting is encouraged and facilitated. Information is shared fully and in a timely manner so that patients and their family members can make informed decisions.
Elements of patient-centered care
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In patient-centered care, an individual’s specific health needs and desired health outcomes are the driving force behind all health care decisions and quality measurements. Patients are partners with their health care providers, and providers treat patients not only from a clinical perspective, but also from an emotional, mental, spiritual, social, and financial perspective.
What is patient-centered care?
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www.ncbi.nlm.nih.gov www.ncbi.nlm.nih.gov
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Experts suggest family engagement in care can improve safety for hospitalizedchildren
Connection between family engagement in care and safety
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www-sciencedirect-com.ezp-prod1.hul.harvard.edu www-sciencedirect-com.ezp-prod1.hul.harvard.edu
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Deyo et al. (8) demonstrated a reduction in the adverse impact of inadequate health literacy in the neurosurgical field. The impact of an interactive videodisc program that informs patients of their treatment options for back surgery on patient outcome and surgical choices was evaluated. The program helped facilitate decision making and ensured informed consent. It also reduced surgery rates for patients with herniated disks. The authors of this study also implemented the use of patient-oriented multimedia to augment comprehension and advocated a similar strategy for other clinicians. Further commitment is needed to put health literacy at the forefront of improving health care and reducing health expenditures, especially in neurosurgery.
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- Jan 2018
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mattheneus-healthcare.com mattheneus-healthcare.com
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patient adherence
Patient adherence strategy and Big Data
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- Nov 2017
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www.kidney.org www.kidney.org
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This is a great article with crucial but very basic information that we can use, that also ensures any patient with no previous dietary knowledge will easily understand.
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