The best currently available evidence shows that the methods and results of clinical trials are routinely withheld from doctors, researchers, and patients [2–5], undermining our best efforts at informed decision making.

This week there was an amazing landmark announcement from the World Health Organisation: they have come out and said that everyone must share the results of their clinical trials, within 12 months of completion, including old trials (since those are the trials conducted on currently used treatments).

If you have the link you can participa

There is also no easy way of informing an author that someone has commented on his or her work, especially if he or she is not a Hypothes.is user.

Reasons for not making data electronically available. Regarding their attitudes towards data sharing, most of the respondents (85%) are interested in using other researchers' datasets, if those datasets are easily accessible. Of course, since only half of the respondents report that they make some of their data available to others and only about a third of them (36%) report their data is easily accessible, there is a major gap evident between desire and current possibility. Seventy-eight percent of the respondents said they are willing to place at least some their data into a central data repository with no restrictions. Data repositories need to make accommodations for varying levels of security or access restrictions. When asked whether they were willing to place all of their data into a central data repository with no restrictions, 41% of the respondents were not willing to place all of their data. Nearly two thirds of the respondents (65%) reported that they would be more likely to make their data available if they could place conditions on access. Less than half (45%) of the respondents are satisfied with their ability to integrate data from disparate sources to address research questions, yet 81% of them are willing to share data across a broad group of researchers who use data in different ways. Along with the ability to place some restrictions on sharing for some of their data, the most important condition for sharing their data is to receive proper citation credit when others use their data. For 92% of the respondents, it is important that their data are cited when used by other researchers. Eighty-six percent of survey respondents also noted that it is appropriate to create new datasets from shared data. Most likely, this response relates directly to the overwhelming response for citing other researchers' data. The breakdown of this section is presented in Table 13.

Data sharing practices. Only about a third (36%) of the respondents agree that others can access their data easily, although three-quarters share their data with others (see Table 11). This shows there is a willingness to share data, but it is difficult to achieve or is done only on request.

Nearly one third of the respondents chose not to answer whether they make their data available to others. Of those who did respond, 46% reported they do not make their data electronically available to others. Almost as many reported that at least some of their data are available somehow, either on their organization's website, their own website, a national network, a global network, a personal website, or other (see Table 10). The high percentage of non-respondents to this question most likely indicates that data sharing is even lower than the numbers indicate. Furthermore, the less than 6% of scientists who are making “All” of their data available via some mechanism, tends to re-enforce the lack of data sharing within the communities surveyed.

Journals and sponsors want you to share your data