6 Matching Annotations
  1. Nov 2022
    1. Participants must be given an informed consent form and detailed information sheetsthat: are written in a language and in terms they can fully understand describe the aims, methods and implications of the research, the nature of theparticipation and any benefits, risks or discomfort that might ensue explicitly state that participation is voluntary and that anyone has the right torefuse to participate and to withdraw their participation, samples or data atany time — without any consequences state how biological samples and data will be collected, protected during theproject and either destroyed or reused subsequently state what procedures will be implemented in the event of unexpected orincidental findings (in particular, whether the participants have the right toknow, or not to know, about any such findings).

      Detalles del consentimiento informado

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  2. Aug 2022
  3. Feb 2022
  4. Oct 2021
  5. Sep 2020
    1. Leicester UCU en Twitter: “Universities are conducting an experiment, an experiment that involves human beings (university staff and students) and a life-threatening virus. But experimental subjects must give informed consent. (That's basic research ethics.)” / Twitter. (n.d.). Twitter. Retrieved September 26, 2020, from https://twitter.com/leicesterucu/status/1309107917879156737

  6. Feb 2020
    1. Social media research ethics faces a contradiction between big data positivism and research ethics fundamentalism. Big data positivists tend to say, ‘Most social media data is public data. It is like data in a newspaper. I can therefore gather big data without limits. Those talking about privacy want to limit the progress of social science’. This position disregards any engagement with ethics and has a bias towards quantification. The ethical framework Social Media Research: A Guide to Ethics (Townsend and Wallace, 2016) that emerged from an ESRC-funded project tries to avoid both extremes and to take a critical-realist position: It recommends that social scientists neither ignore nor fetishize research ethics when studying digital media.Research ethics fundamentalists in contrast tend to say,You have to get informed consent for every piece of social media data you gather because we cannot assume automatic consent, users tend not to read platform’s privacy policies, they may assume some of their data is private and they may not agree to their data being used in research. Even if you anonymize the users you quote, many can still be identified in the networked online environment.